Intrahepatic cholangiocarcinoma

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Intrahepatic cholangiocarcinoma

by monicawoler on Sat Dec 31, 2016 12:38 AM

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My otherwise healthy 81 year old mother was diagnosed with BDC on 12/9/17.  She had a total knee replacement in June abd while she recovered fabulously physically ffrom her knee surgery, since the surgery she lost 45 pounds, experinced extreme nausea and was so weak that she stopped going out of the house.  Prior she was swimming, walking, playing card, going to movies, out to dinner and was the director of her social club (80 members).  She kept going to her internist and begging him to find out what was wrong.  He perscribed Nexium, which helped initially (a few weeks).  Eventually he sent her to a GI doctor who performed an endoscopy - no findings.  She had a colonoscopy 14 months prior - clear.  3 months into this ordeal she said to her internist, I am afraid I have cancer, I think I am dying and he told her she did not have cancer. She begged to be sent to any other doctor to figure out what was wrong.  Her GI doctor ordered a CAT scan with showed a 14.4 cm tumor in her liver.  They told her is was not liver cancer and had metastasized and proceeded to take a chest xray and ordered her last fims from her mamogram.  Both came up negative.  They performed a needle biopsy 2 weeks later and said the markers showed that the Primary is upper GI.  They performed a PET scan and nothing lit up other than her liver.  Went to see an oncologist about 1 week later who informed us it is BDC and they could operate and resection her liver.  The surgeon said that he could remove 60% of the right lobe and that she would have a 60%-70% chance of it not returning.  He stated that he would not recomend chemo as that would make her real sick and would only reduce the recurrance rate from 30% to 15%. We are awaiting the pathology report.  They released her from the hospital 4 days after surgery and she appears to be doing GREAT.  No more nausea and her wound and drain sites are healing very nicely.  Can someone, anyone, please suggest what questions I should be asking the surgeon and oncologist at this point?  Thank you for any and all help that you can offer.  This is the 1st incidence of cancer in our entire family....Mon

RE: Intrahepatic cholangiocarcinoma

by CallSDHomeNow on Sat Dec 31, 2016 05:34 AM

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I am so sorry. I am not able to give you much info since I too just found out my mother (83) has gallbladder/bile duct cancer that has spread to her liver. They told us that it originated in either her GB or BD. She is not a candidate for surgery. My mother is on chemo (gemzar) and I have read chemo does not show good results with GB/BDC but we want to give it a try. She has had 2 chemo treatments (once week for 6 weeks) and is tolerating it very well. Only has mild constipation. Most others I have read have started with 2 chemo drugs (gemzar and cisplatin). She also had an external drain placed. Lucky your mother is doing great. My mother was released the same day of the procedure and was bed ridden for 5 days. The anesthesia really messed her up. She could not get past the "fog".

I wish your mother the best.

RE: Intrahepatic cholangiocarcinoma

by monicawoler on Sat Dec 31, 2016 09:54 PM

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Thank you so much for your post.  I was very worried about the fog, but it did clear after 4 days.  I am very hopeful and I know just one week after surgery is not time to count your chickens before they are hatched but I am very hopeful and believe in the Law of Attraction, so only positive thoughts right now.  Good luck to you and your Mom, I will keep you both in my prayers....

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