Opdivo for Small Cell Lung Cancer

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Opdivo for Small Cell Lung Cancer

by tks3xs on Wed Feb 08, 2017 10:42 PM

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Is anyone out there with small cell lung cancer on Opdivo yet? My mother has SCLC (stage 4 at diagnosis April 2015). Has done three lines of chemo (carboplatin, cisplatin, etoposide, irinotecan, taxotere). I moved her to live with me and the new oncologist just said Opdivo was recently approved to use for SCLC (like 4 weeks ago). So she'll have her first treatment tomorrow. I'm curious if anyone else out there with SCLC has tried it. If so, what stage of diagnosis were you in when starting? Or if you have NSCLC, same question...what stage were you in when starting and what have the results been?

He said it won't be a cure but won't be toxic like chemo and might give her a few more months.

RE: Opdivo for Small Cell Lung Cancer

by ej811202 on Wed Feb 22, 2017 08:47 PM

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I hope your mom is doing well.

May I ask which country you are living? I have never heard that Opdivo is approved for sclc. I wish i could try for my dad as well. 

I know one person who did opdivo clinical trial. And he is doing so well. The tumor has shrinked a bit as well.

I wish you all the best for your mom

RE: Opdivo for Small Cell Lung Cancer

by tks3xs on Wed Feb 22, 2017 10:47 PM

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I live in the US. Per her oncologist, Opdivo was just allowed for SCLC about 4 weeks ago. He said while it has not been FDA approved, it has been approved through the National Comprehensive Cancer Network (www.nccn.org), which is what insurances look at and therefore it is covered by insurance.

The oncologist logged into this network and pulled it up and showed me where it was now on the list for treatments for SCLC. Apparently the NCCN is where all the big wigs in cancer research share their findings which is why the insurance companies tend to follow suit.

That being said, we only did one treatment of Opdivo. She started to rapidly decline (I do not think it had anything to do with this treatment, rather she was nearing the end of her fight with SCLC) and is now under hospice care at my home. I think had she been given this treatment at the beginning, almost two years ago...we might have seen a better outcome.

My friend's dad has metastatic melanoma lung cancer and is now in hospice, but had been doing Keytruda treatments (20 of them) and she feels it gave him a year longer of life. So I think there is promise with immunotherapy...just a little too late for my mom to get any benefit from it.

Best of luck to you.

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