Age 32, Stage 4 esophageal junction cancer- surgery?

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RE: Age 32, Stage 4 esophageal junction cancer- surgery?

by eternalife on Sat Apr 01, 2017 06:28 PM

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Fnixon,

Can you tell us what stage cancer were you diagnosed and were any  mets involved?

Thanks,

RE: Age 32, Stage 4 esophageal junction cancer- surgery?

by doingfine on Sat Apr 01, 2017 06:58 PM

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Aoife,

So good to hear from you.  You are such an inspiration to all of us.  Take care.  Sending hugs your way.

RE: Age 32, Stage 4 esophageal junction cancer- surgery?

by Aoife on Sat Apr 01, 2017 07:03 PM

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Thanks, very busy here, my son is 7 tomorrow!  The 10 year since the surgery and 11 years since the first symptons were huge things for me...now back to running after my still 6 and 5 year old...

RE: Age 32, Stage 4 esophageal junction cancer- surgery?

by doingfine on Sat Apr 01, 2017 07:30 PM

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Mallory,  So sorry to hear of this diagnosis.  I was on Cisplatin and CPT 11 but that was 13 years ago.   The Platin drugs are very rough but effective.  I have a friend who is now being treated for mets to the liver and she is very encouraged because it is responding to treatment and the doctors are extremely optimistic.    Huge advances are being made with the chemo treatments.  Yes, the surgery is tough, but I can say that 13 years later I am glad I had it done.

He will need your support, but you must also take care of yourself. Caregivers often do not get the recognition they need.  My sister came in twice a week to give my husband a break. See if you can get a friend or relative to be with him so you can get out once and awhile after the surgery. Having someone there while you get out will give you peace of mind. Trust that he will do well. You need your rest, especially with 2 little ones. Melatonin is a non-drug sleep aid.  Ask your pharmacist what you can use that will not knock you out totally. Sometimes Zyrtec works for me and Tylenol PM, however, the PM in the Tylenol is nothing more than Benadryl. Keep praying and keep positive.

RE: Age 32, Stage 4 esophageal junction cancer- surgery?

by doingfine on Sat Apr 01, 2017 07:32 PM

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Mallory,  So sorry to hear of this diagnosis.  I was on Cisplatin and CPT 11 but that was 13 years ago.   The Platin drugs are very rough but effective.  I have a friend who is now being treated for mets to the liver and she is very encouraged because it is responding to treatment and the doctors are extremely optimistic.    Huge advances are being made with the chemo treatments.  Yes, the surgery is tough, but I can say that 13 years later I am glad I had it done.

He will need your support, but you must also take care of yourself. Caregivers often do not get the recognition they need.  My sister came in twice a week to give my husband a break. See if you can get a friend or relative to be with him so you can get out once and awhile after the surgery. Having someone there while you get out will give you peace of mind. Trust that he will do well. You need your rest, especially with 2 little ones. Melatonin is a non-drug sleep aid.  Ask your pharmacist what you can use that will not knock you out totally. Sometimes Zyrtec works for me and Tylenol PM, however, the PM in the Tylenol is nothing more than Benadryl. Keep praying and keep positive.

RE: Age 32, Stage 4 esophageal junction cancer- surgery?

by MalloryZ on Sat Sep 09, 2017 02:59 AM

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Hi, thank you for sharing. I haven't been able to respond as often as I would have liked, but my husband is currently having "maintenance chemo" (Herceptin only for 4 rounds) so things are more normal lately without him receiving full treatments every 3 weeks. How is your husband doing at this point? Mine will have scans again on Oct 24th and if there has been minimal or no growth since he began "'maintenance" treatment, surgery will be more likely... Inwould love to hear more about the surgery experience whenever you have a chance. Was recovery time long in regards to being in the hospital, or was he able to come home during recovery time? Thanks for your time and anything you share.
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