Opdivo

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RE: Opdivo

by JMathias on Fri May 12, 2017 03:50 PM

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Thank you for sharing your story too, Ranger... the more I hear, the more hope there is!  I'm so happy it worked for you!  It's crazy that it doesn't work for everyone... so odd but then again I guess it's based on your system - PD-1 and CTLA-4 inhibitors.  In a way I wish they would check my husbands markers to see if it will work for him - is it worth it to go through all this if he doesn't have the markers?! 

I will definetely talk with the oncoligist about the the copay assistance!  Thanks for the info!!! 

RE: Opdivo

by Sdurnell on Mon May 15, 2017 12:32 AM

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Another good thing about immunotherapy is that there are far fewer side effects than with chemotherapy.  Unfortunately with both of them the effects are quite variably from one individual to another.

Remember that chemo for H&N cancer is only done to aid the radiation in its work--it's not like chemo for other cancers, where it does the heavy lifting.  So it's likely that his recurrences are not due to chemo not working.  More likely they were resistent to the radiation, or at least to both.

Everything about cancer and its cures is confounding, both to patients and to doctors and researchers.  One of the biggest misconceptions is that it's one disease, when actually it's many different ones that share some traits.  Combined with the fact that we are all biologically different, it can be quite maddening and difficult to understand, for sure.

Immunotherapy is so new and complicated and expensive.  I'm betting that if it were possible to test to see whom it would benefit that would be a part of the protocol.  And someday it likely will be.  Right now you are on the cutting edge.

Best of luck to you both!

Susan

RE: Opdivo

by Jim-P on Mon May 15, 2017 12:41 PM

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I am now on Opdivo. I have stage 4 metastatic melanoma on my left lung. I started with a 2 drug combination of Opdivo and Yurvoy, and after 4 treatments switched to Opdivo only and have seen, as of my last scans last week, an overall reduction of the nodules of 68%. While that's great news I also talked to a lady who had a pretty severe reaction to the drug so you really need to keep a close eye on how you're doing during the treatment. These immunotherapy drugs are amazing and hopefully they'll make a difference for your husband as well. All the best, Jim

RE: Opdivo

by Minimartin on Mon May 15, 2017 07:21 PM

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I have been on Opdivo since Oct. 4, 2016. Stage IV renal cancer that spread to both lungs. Right kidney/adrenal gland removed. Tried votrient first and couldn't handle it. My largest tumor was 1.1 centimeters and completely disappeared the week after Thanksgiving. I found out on Valentine's Day that the scattering of small tumors in both lungs were gone. I have no port and get infusions every two weeks. The Opdivo destroyed my thyroid function, but I am taking synthroid and it is now back to normal. I have slight bowel discomfort, but OTC meds takes care of that. My appetite is normal and I have an excellent energy level. I am going to go work outside in my garden right now. I am beyond pleased with the Opdivo in my cancer journey.

RE: Opdivo

by JMathias on Tue Nov 13, 2018 11:26 PM

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Sadly, my husband lost his battle this time last year.  I hate this cancer and hate that the VA has denied EVERY claim

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