Re: Would like to Hear from Anyone Who has Been Diagnosed with Stage 4 Esophogeal Cancer within last few years

19 Posts | Page(s): 1 2  Next 

Re: Would like to Hear from Anyone Who has Been Diagnosed with Stage 4 Esophogeal Cancer within last few years

by mission on Sun May 28, 2017 04:36 PM

Quote | Reply

My husband was diagnosed on May 31st, 2016 with Stage 4 Esophogeal Cancer.  Is doing second line Chemo and Radiation at present.  Cancer had shown significant progression to lymphnodes within about two months. 

A lot of the messages here are very outdated - 2002???  Not sure if these people are even alive.  I would like to talk to people who have been diagnosed Stage 4 within the last few years.  Hope they are still around.  Want to deal with present not 15 - 20 years ago messages.

Thank you.

RE: Re: Would like to Hear from Anyone Who has Been Diagnosed with Stage 4 Esophogeal Cancer within last few years

by mission on Sun May 28, 2017 04:38 PM

Quote | Reply

Mission hopes she did not offend anyone with her recent post.    It's just that when I look at all the msgs. so many are very old.  Would love to talk to current "fighters" "survivors.  That's old.

RE: Re: Would like to Hear from Anyone Who has Been Diagnosed with Stage 4 Esophogeal Cancer within last few years

by spencerJ on Mon May 29, 2017 11:48 PM

Quote | Reply

mission, I was diagnosed 3 years ago stage 4 and right now I am cancer free.  I went thru the chemo and radiation and that reduced the tumor enough for them to change their mind and do the surgery.  The surgery was hell but I got thru it.  I do everything as normal now except I have to sleep on a wedge pillow at night and take antacids.  Your in the hard stage right now--- waiting.  Waiting to see what's going to happen.  Never give up.

RE: Re: Would like to Hear from Anyone Who has Been Diagnosed with Stage 4 Esophogeal Cancer within last few years

by Ebott614 on Tue May 30, 2017 06:33 PM

Quote | Reply

Hi Mission,

On June 10th 2014 my husband was diagnosed with stage 3 esophageal cancer. He had chemo and radiation then the "big" surgery...then more chemo to "mop up" in case there were cancer cells remaining.

He has never been free of progression and is now stage 4. All the chemo "cocktails" were tried and so began Opdivo this past September. Treatment with Opdivo is a clinical trial that has not been FDA approved yet for this kind of cancer.

This past January it was found that he had 4-5 mets to the brain and then began WBR (whole brain radistion). After that an MRI was done and tumors shrunk some but a couple of new ones were discovered.

Just today he received results of a CT scan which showed progression in the abdomen and it was decided to stop treatment with Opdivo.It 's very expensive for this treatment...I think $150,000 for the 1st infusion and $100,000 per treatment thereafter.

A PET scan is scheduled for next week to see if it has spread to other areas of his body.

I am so sorry that you need to visit this site. You and your family I will pray for...it's not easy to see your loved one go through this horrible disease.

There have been success stories on this discussion board and others....May God bless you with good results from the treatments.

Elizabeth

RE: Re: Would like to Hear from Anyone Who has Been Diagnosed with Stage 4 Esophogeal Cancer within last few years

by Jah10050 on Wed May 31, 2017 01:45 PM

Quote | Reply

My younger brother was diagnosed with Stage 4 esophageal cancer (mets to liver and lungs) in December of 2013 at the age of 39.  He died 2 weeks ago and it sounds like you are looking for survivors, but I wanted to post this because he was initially given a prognosis of 6 months, and survived 3 1/2 years.  During that time, he tried 4 different chemo regimens, two of which included herceptin; had radiation to the leg and head for brain and bone mets; and just before his death, was getting Opdivo. 

RE: Re: Would like to Hear from Anyone Who has Been Diagnosed with Stage 4 Esophogeal Cancer within last few years

by mgloughran on Thu Jun 01, 2017 04:25 PM

Quote | Reply

Hi,

I was diagnosed "late" stage 3 in January 2014. It had spread to local lymph nodes, as well as one distant lymph node at that time. The tumor itself had advanced to the point where I had lost a lot of blood internally. I was given two transfusions during my initial hospital stay (when it was discovered).

Now, 3.5 years later. Great results with the radiation and chemo (Taxol and Carboplatin). Qualified for surgery based on those results, had it in May of 2014. Recovery was grueling, didn't feel "normal" for 18 months or more. Down to 118 pounds at my low. 

These days I feel pretty good, still NED. Have had several endoscopy procedures to stretch what remains (it contracts due to scar tissue, I believe). Have another one scheduled for July.

Feel free to ask me any questions you might have.

Matt

RE: Re: Would like to Hear from Anyone Who has Been Diagnosed with Stage 4 Esophogeal Cancer within last few years

by Mark06074 on Thu Jun 01, 2017 05:02 PM

Quote | Reply

Well, come back now that you have a couple of excellent (recent) replies! :)

Hope thinhgs turn the corner for you guys...

RE: Re: Would like to Hear from Anyone Who has Been Diagnosed with Stage 4 Esophogeal Cancer within last few years

by janwes on Thu Jun 01, 2017 05:38 PM

Quote | Reply
I was diagnosed with stage 4 adenocarcinoma of the gastro oesophageal junction in October 2008 with 2 mets in my liver. I was treated with ECX chemo only. I had 5 cycles only as the side effects were so severe and I developed neutropenia requiring a blood transfusion. In spite of this, all the tumours reduced considerably and continued to reduce in size over the next 2 years. I have had regular scans since and a PET scan 2 years ago showed no sign of active cancer. I have used various complementary therapies and follow a careful diet. My oncologists are surprised I have done so well and lead a very active normal life in spite of being told all those years ago that I was unlikely to survive more than 12 - 18 months. I hope you find my story inspiring. All the very best of luck to you both.Jane (UK)

RE: Re: Would like to Hear from Anyone Who has Been Diagnosed with Stage 4 Esophogeal Cancer within last few years

by Scaredwife21 on Thu Jun 01, 2017 10:19 PM

Quote | Reply

Hello, my husband was diagnosed with the same 6 weeks ago. Stage 3 Non operable.  Had 4th chemo yesterday. Esophagus mass that spread to stomach.  Would like to talk as well.

RE: Re: Would like to Hear from Anyone Who has Been Diagnosed with Stage 4 Esophogeal Cancer within last few years

by Vaquero45 on Fri Jun 02, 2017 01:57 AM

Quote | Reply

I was diagnosed Stage 4 in July 2016.  2-3 cm main tumor at my gastroesophageal junction, along with 3 enlarged lymph nodes along my esophagus and a 1-2 cm spot on my liver.  Biopsy showed that it was adenocarcinoma, HER2 negative.

I had 12 rounds of FOLFOX chemo, the last 3 rounds without the Oxaliplatin due to worsening neuropathy in my hands and feet.  As of February 2017 I am NED.  (No evidence of disease by PET/CT scan).  Just had another PET/CT on May 31 and still NED. 

I am currently on Xeloda tablets daily for maintenance.  NED doesn't always mean zero cancer, so my oncologist is playing it safe.  I'm doing a low dose daily instead of the typical 21 day cycle.  (14 days with meds, 7 days off)

I don't think I would have seen clean scans if it wasn't for supplementing with curcumin extract during my chemo treatments.  I started taking a highly bioavailable from of curcumin in high doses soon after I was diagnosed.  I still take it, and I think I will always take it.  My oncologist is of the opinion that it might have helped "a little."  I say the proof is in the pudding, for me at least.  Every case is different, of course.

Not giving medical advice here, just sharing what I think helped me.  There are several early studies suggesting that curcumin enhances the effect of some chemotherapies, with 5FU and the platinum based chemo being 2 that I know of. 

19 Posts | Page(s): 1 2  Next 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.