Stage 4 colon cancer metastasis liver. Help please!

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RE: Stage 4 colon cancer metastasis liver. Help please!

by Ashtonsom on Sun Jun 18, 2017 09:02 PM

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I had stage three colon rectal cancer, luckily mine had not spread past the colon wall and into one lmphy node. Since I was only 52 at the time it was found they believed that since it was in one of the nodes I should have radiation and chemo. I had 5 and 1/2 weeks of radiation 5 times a week. Then I began oral chemo treatments with intravenous chemo every 3 weeks to make 6 total treatments over a 5 month time. I have been told that the same chemo treatments would have been used had it spread. I really didn't have to many problems with the chemo. I didn't loose my hair and I really had very little nausa. I did loose my appetite and lost 40 pounds. I would be straving and then when I had the food I could only eat a small amount.

My main problems during treatment where that I would become shaky when I was hungry and would sometimes experience nausa when I became hungry. Make sure that he has a prescription for nausa medication and take it as soon as he becomes the least bit nausous. Eating little small meals during the day really seemed to be the best thing I could do.

I was pretty tired a lot but not anything that was terrible.

The one thing I would say is that the type of chemo medication I was given through the vein was the kind that would cause you to be hypersensitive to cold. Talk to the oncologist and find if this is something that could happen with his chemo meds. If so then make sure to steer clear of anything that is cold for the week following the treatment. This includes opening the freezer at home. I went to grab something out of the freezer and had some of the worst pain shoot through my hands that I had ever felt without being injured or something like that.

The biggest is not to drink or eat anything cold if he does have the chemo drug that causes the sensitivty to cold. I was very careful and did not have this happen to me but was told if I was to eat or drink anything cold it would make me feel as if my throat was closing up. It wouldn't be it would just feel as if it was. Just be very cautious when it comes to the cold.

I wish him the best and hope that he has as few side effects to the chemo as I did. It is not fun but it will save his life in  the long run so it is nothing more than a small price to pay. 

The last thing I would say is that I found I should eat something small before I went to have the treatments. The first treatment was not so bad but the 2nd one had my face feeling strange like the skin was pulling tight. The 2nd treatment was the worst for me and the others didn't seem to have many side effects during or right after as I mentioned earlier.

I do have one lasting effect from the treatments as I have neuropthy in my feet a year after the last treatment. They say it will usually go away but as my started up the most after I had finished treatment I may have to live with it. 

When it began a year ago I thought there was no way I could live with the discomfort in my hands and feet. But today I have grown to live with it and it is not really that big of a deal. I am on a fentanal patch, amitriptyline,lyrica and oxycotton 3x a day. It is something that I am thinking I will have to contend with for the rest of my life.

It is what it is so I just go with it.

I hope that some of this helps and I truly wish him the very best.

RE: Stage 4 colon cancer metastasis liver. Help please!

by Kkshelper on Wed Jun 28, 2017 09:06 PM

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On Jun 03, 2017 7:13 AM Kkshelper wrote:

Hi there. My 35 year old boyfriend has just been diagnosed with bowel cancer and it's spread to his liver. He has been told that chemotherapy is his only option and that on average survivors live for 3 years+. I don't want him to go down the chemotherapy route as this weakens his immune system amongst other things. Please share your stories of chemo and alternatives. Any information at all is not too little Thank you so much Mary
Hi everyone. So we began chemotherapy last week and so far I am grateful to God because it hasn't been terrible. my boyfriend is on Folfiri and will start Cetuximab in a few weeks which is supposed to have terrible side effect on skin with rashes and pimples. Has anyone had experience with this drug please? My boyfriend is finding that he is fatigued a lot. I thought this would get better as the days post chemo progressed but it's not the case. It seems like he felt better just afterwards and very fatigued now. Can anyone relate to this please? He drinks about 5 litres of water a day to stay hydrated, has lost his appetite and not as active as he would like I.e. He is taking 20 minute walks every other day. Thanks so much

RE: Stage 4 colon cancer metastasis liver. Help please!

by Lholliman on Thu Sep 14, 2017 10:09 PM

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On Jun 04, 2017 1:16 PM KtopherMac wrote:

Dont be so quick with the judgement on chemo.  There are drugs that you assume are chemo when they are actually immunotherapy that is targeted at the cells or help prevent the cancer cells from feeding.  Yes, chemo does knock down the immune system, but if managed well it may not have the affect you are thinking.  I was very rarely sick or knocked back by chemo.  I had 5FU with oxaliplatin and avastin.  I developed nueropathy in my fingers which recovered largely toward the end back to normal.  It also allowed for some shrinkage.  I also had liver mets, multiples.  I had 2 portal vein embolizations that allowed for resection of those mets and sufficient remnant liver.  The location in the bowel is kind of key.  Are you working off one doctors opinion?  Are you able to get to a hospital that may be a bit more progressive/aggresive in its approach.  Is he otherwise in good health (weight, blood pressure, good stamina?).  I recommend exercise during chemo...sounds odd, but it helps the blood flow and it actually helps increase strength, especially at that age.  Do not just brush off chemo, as many are not chem in that traditional sense (example, avastin works to reduce feeder capilaries to the tumor, no capilaries and the tumor could shrink).  Are they able to resect the primary tumor in the bowel?  I am 8 yrs out from a stage 4 diagnosis, with no evidence of disease.  That 5% is an old statistic, and your boyfriend isn't a statistic... if you are interested the new stat is actually just over 11% and that data is more than 5 yrs old.

Thank you for the insight. My brother has been diagnosed with stage 4 met to the liver.  Your story has provided some hope as I feel his treatment right now is one of the best the country has to offer.  You are right about chemo not being as it was known.  Thank you for sharing your story.

RE: Stage 4 colon cancer metastasis liver. Help please!

by mydaughtertina on Tue Sep 26, 2017 02:58 PM

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My beautiful 40 year old daughter died of colon cancer with mets to the liver. She didn't make it, it was terrible and in the end she bled to death dute to the mets to her liver. Chemo made her weak and feeling lousy, Chemo knocked her down and she ended up in bed for days. she was also very weak. I have made a decision, if I should get this friggin horrible disease I will not do chemo, radiation or alternatives. I would have a better life this way, why should I suffer with chemo which is worst than the disease? Remission also means the cancer in under control FOR NOW, but 8 of 10 times it comes back into other areas of your body. So even with chemo remission may be possible, but for how long?

RE: Stage 4 colon cancer metastasis liver. Help please!

by Carrie27 on Tue May 22, 2018 12:45 PM

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I'd like to thank you for this. My husband was diagnosed with stage 4 rectal cancer and will begin treatment next week. Reading what you wrote was comforting, as he will be having he same chemo as you mentioned. It's helpful to hear that you have no evidence of cancer. 

Thank you. 

RE: Stage 4 colon cancer metastasis liver. Help please!

by Hannahrose on Thu Jul 05, 2018 06:33 AM

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Hello my name is Hannah, i have stage 4 bowel cancer spread to my liver and chemo doesnt seem to be working.

Can you please tell me how your mum used the cannabis oil as i will like to give it a go with my chemo please?

RE: Stage 4 colon cancer metastasis liver. Help please!

by An123 on Thu Jul 05, 2018 02:30 PM

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Hi, I am the same situation as you. I can't get good cannabis where I live. I am looking into these medications, LDN, mebendazole, cimetidine, metformin and citalopram. All of them are cancer fighter. I take LDN and feel great on it. I stopped chemo in may and my cancer marker is still normal in July. 

RE: Stage 4 colon cancer metastasis liver. Help please!

by farahb on Mon Jul 16, 2018 07:05 PM

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Good luck fighting your cancer and getting a good scan! Could you shed some light on the CBD oil? Where do you get it from and how is it prescribed, I’m really interested for my father. I live in the USA but he doesn’t.

RE: Stage 4 colon cancer metastasis liver. Help please!

by wandalein on Wed Jul 25, 2018 03:22 AM

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My husband had stage 4 colon cancer resection in 2012, he was stage 4 and had liver resection in 2014.  He had no chemotherapy either time.  He is doing really well, no sign of cancer and going strong.  Love those great check ups.  I am not saying that people shoudl say no to chemo but he really felt it would kill him and even his surgeon advised him against radiation after the first surgery.  I researched supplements, the main one being Oncolyn (plant based), lots of vitamin D, magnesium and vitimans.  That is it.

RE: Stage 4 colon cancer metastasis liver. Help please!

by Kkshelper on Sat Aug 11, 2018 07:55 AM

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Hi Hannahrose. The response I got to this was a private message so I’m postiing and hope it’s useful. "The first thing they need to do is watch "run from the cure" (can be googled) The oil goes by different names...but the original is called RSO ( Rick Simpson oil ) sometimes it's called phoenix tears, Colorado tears...but it has to be made by a medical clinic. Can't get it in texas. You need a gram of oil per day for 90 days. But it will start killing the cancer right away. There will be tons of questions....it can seem overwhelming but it's all worth it” I sincerely hope you begin to see progress and get 100% recovery soon. Take care
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