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AliveInOldeTown's Recent CancerCompass Activity

  • AliveInOldeTown has replied to a post on the message board

    Hi Tammy,  I have been active on the board since before 2010.  Can't remember exactly when I joined but it was a long time ago.  It seems impossible to know when someone passes away unless a family member posts a message afterwards.  Sometimes people just go on with their lives. I often think of and wonder about the people I got to know.  I hope you continue to have good health.  

    January 25 at 10:53 PM view post
    • AliveInOldeTown has replied to a post on the message board

      I had Whipple surgery for pancreatic cancer (adenocarcinoma) at age 50.  I was active, in good health and physical condition before diagnosis and surgery.  As we always need to say, we are all different.  My experience was it took three years after surgery to regain my strength.  I restarted exercise and activity very soon after the surgery. My stamina has never really returned to what it was befo...

      January 18 at 9:11 PM view post
      • AliveInOldeTown has replied to a post on the message board

        The best thing to help your firend regain weight will be if he can have surgery to remove the tumor.  Before surgery, my doctors told me to eat high protein, low fat meals.  As often and as much food as I could tolerate.  Also, it may be useful to your friend to get a prescription for pancreatic enzymes (Creon) to help digest the food he is able to consume.  Some people find high calorie protein s...

        January 04 at 8:10 PM view post
        • AliveInOldeTown has replied to a post on the message board

          November 27, 2018 was sixteen years for me.   

          December 29 at 3:38 PM view post
          • AliveInOldeTown has replied to a post on the message board

            Your post is a month old, but hopefully you are still monitoring it.  A link to the Inspire Ovarian Cancer forum follows.  It is an active board with women who share experience/concerns/support for other women with OC.  I am sure you can find some help there.   https://www.inspire.com/groups/ovarian-cancer/

            December 18 at 8:03 PM view post
            • AliveInOldeTown has replied to a post on the message board

              If you had most of your pancreas removed, you should definitely speak with the doctor about Creon.  I am always surprised that doctors, most often surgeons, do not mention the possible need for supplementing pancreatic enzymes following surgery removing part of the pancreas.  Creon, when taken correctly and in sufficient quantity helps with symptions - explosive gas, foul smelling floating stools, diarrhea,...

              November 05 at 1:32 PM view post
              • AliveInOldeTown has replied to a post on the message board

                Hi LisaW26, This is always a difficult question because we are all different.  For me, I "healed" from the surgery pretty quickly and went back to work eleven weeks after surgery.  But, I was very very weak.  Also, food was an issue, having to learn what I could eat etc. and how to take Creon.  Stamina, or getting back to yourself as you mentioned is an entirely different thing.  That took...

                November 01 at 5:00 PM view post
                • AliveInOldeTown has replied to a post on the message board

                  I had Whipple surgery in 2002.  Adenocarcinoma at head of pancreas.  It was found early stage because I had developed jaundice due to location of the tumor. There was no metastasis or involvement in surrounding lymph nodes.  I did not have chemo follow up.  So far there has been no recurrence of PC.  I am OK.  I developed Type 3CDM diabetes about 1-1/2 year after Whipple surgery, an...

                  November 01 at 2:04 PM view post
                  • AliveInOldeTown has replied to a post on the message board

                    I had Whipple surgery for PC sixteen years ago.  The only thing I found effective for getting nutrition from food, controlling diahrrea, painful gas etc. is Creon.  I did not have chemo after surgery, but I did have the problems you describe until starting Creon.  

                    September 28, 2018 view post
                    • AliveInOldeTown has replied to a post on the message board

                      Yes, hyperglycemia is high blood sugar.  6 units once daily is a low dose of insulin.  It is the same dosage I was given to start Lantus, a long acting basal insulin.  Insulin therapy made me feel hungry (with hunger pangs) even after eating.  I think this is fairly common with insulin therapy, but.... it gets better with time.  Or, maybe we just learn to ignore it. About the sweet tooth.......

                      July 16, 2018 view post
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                      About AliveInOldeTown

                      Survivor
                      Pancreatic Cancer

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