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Anason's Recent CancerCompass Activity

  • Anason has replied to a post on the message board

    Would you add me to the email? I also have DIPNECH and NETS. Thank you. 

    January 10, 2016 view post
    • Anason has created a new message board discussion

      I've read some posts on here regarding patients with dipnech. I was just diagnosed with this and have been reading about how rare this condition is. I'm contemplating entering a clinical study through MDA. Has anyone else tried the new clinical trial?

      October 15, 2015 view discussion
      • janarader49

        janarader49 No but I would like to know about it. What is MDA. I am sorry that you too have DIPNECH. It is a real pain in the rear. What are your symptoms. How old are you. Where do you live.

        October 29, 2015
      • Anason

        Anason MDANDERSON in Houston. I am 47 From louisiana. I had pain on left side of chest and back. PET scan showed nodules. biopsy showed malignant neuroendocrine tumor. Did scans to see where cancer originated from but found it nowhere else. They said it was dipnech. What about you? How long have you had it and are you being treated?

        October 29, 2015
      • winaward

        winaward what is the criteria for participating in this study?

        October 30, 2015
      • Anason

        Anason I don't know.

        October 30, 2015
      • Anason

        Anason I was just told it was DIPNECH and the biopsy of one of the nodules was malignant. It's nowhere else but the lungs.

        October 30, 2015
      • winaward

        winaward May I ask how you know that it is nowhere else? Did they do tests to determine that?

        November 05, 2015
      • Anason

        Anason Yes they did ct scans and a PET scan.

        November 05, 2015
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