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AnnJohn's Recent CancerCompass Activity

  • AnnJohn has created a new message board discussion

    Do any of you or someone you know use Salivamax to help with dry mouth?  My husband used it for about a year and it worked great.  He no longer has issues with his saliva. If you do, please private message me.

    November 04 at 8:00 PM view discussion
    • AnnJohn has created a new message board discussion

      For those of you who have been on this board for awhile, we returned Friday from our six-month RV travels around the USA.  It was absolutely wonderful.  We were in 26 states and ran 13 half marathons along the way! 15,000 miles! John went for his 18 month checkup just before we left in April.  We were able to put cancer out of our minds (most of the time) and enjoyed ourselves and the United States be...

      November 04 at 6:56 PM view discussion
      • AnnJohn has replied to a post on the message board

        SMP-I just asked hubby about the removal of his Peg tube. He said there are two ends of your peg.  One is for feeding and the other is for inflating and deflating the balloon inside.  They put something in the tube to deflate the balloon and it just slides right out.  He said he was so tense and told the nurse to let him know when she was going to remove it and she said,"It's already out". Never felt a...

        June 02, 2018 view post
        • AnnJohn has created a new message board discussion

          We bought our new truck and new 5th wheel and were ready to leave town on Sunday for six months of traveling around the USA and running races. All we were waiting for was John’s three doctors’ visit and we’d be on our way. Great news yesterday. John had his eighteen month CT scan on Monday. Of course, we had to wait until his doctor's appointment on Wednesday to find out the results.&nb...

          April 26, 2018 view discussion
          • AnnJohn has replied to a post on the message board

            Hi Susan: Its actually 26.2 miles!  We started running about 5 years ago just a 5K at work. We didn't stop there. We moved up to 10Ks and up. I set a goal to run a full marathon on my 60th birthday 3 years ago. We trained hard and that was our first full marathon. Since then we switched to 1/2 marathons (13.1) because the training time it takes while we were still working was too...

            April 12, 2018 view post
            • AnnJohn has created a new message board discussion

              John continues to do wonderful and we are trying to relax and be calm until his next PET scan in May (18 months).. He does have a little problem swallowing some food but extra drinking takes care of that problem. He especially likes pasta that goes down so easy.  He went to his GP for his annual checkup last week. The doctor asked him how he was doing and if he is having any side effects. Other than...

              March 26, 2018 view discussion
              • AnnJohn has created a new message board discussion

                John did it!!! He qualified for the Boston Marathon on Saturday at the Mesa/ Phoenix Marathon. One year and three months after the end of all of his treatment. Through all his treatment and afterwards he kept pushing himself on. Always exercised as best he could and did absolutely everything every doctor said including fluoride trays, Ceravavie on his neck, speech lessons, etc. He does use Sa...

                March 02, 2018 view discussion
                • AnnJohn has replied to a post on the message board

                  Dear Clare: John asked me to write this to you.. It seems people are more likely to stay on the board and continue to follow some of the long-term symptoms of treatment. We have been very fortunate. The treatment was terrible yes, but the time went so fast and the only evidence of this disease is a little slur on some words and eating a little slower. Usually wakes up once a night for a ...

                  November 19, 2017 view post
                  • AnnJohn has created a new message board discussion

                    We went to University of Miami yesterday just to go over step by step the results of one-year PET scan (plus I love the doctor there!).  He is not our regular doctor but got involved as John has a little speech issue due to some paralysis on the right side of his tongue where his surgery was. Anyway, Dr. Sergi informed John that as of January 1, 2018 chemotherapy will most likely not be used as part of t...

                    November 17, 2017 view discussion
                    • AnnJohn has replied to a post on the message board

                      My sympathy to you and your family. There is nothing I can say to help you deal with the every day sadness. I am sure you will look back in a year or two and wonder how you ever got out of bed every day. Your children are going to be your saviors. They need you, a smile once in a while, and to keep all the good memories alive. Your husband left you these three gifts to help you! 

                      November 08, 2017 view post
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