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ArgyDuBlew's Message Board Messages

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Hi Susimorph. Just read your post and particularly the last sentence. My story can be found elsewhere in the thread but in a nutshell I was radiated in the mid-fifties when I was eight for a haemangioma in the cheek. A further treatment with some sort of injection using chemical salts followed as an adult, with spectacularly horrid results. I have had a hemi- thyroidectomy due to 'dodgy cells' and suffer hearing loss which the audiologist says is likely to be radiation-related. Unlike for some other people, the hospital that treated me as a child were very helpful and sent me copies of everything -dates, dosages, etc. Surely there must be enough evidence out there for some legal firm to be interested in drawing up a composite compensation claim (?). Take care-life is precious and all-too short.
I live in the UK and had a BCC on the back of my hand. It was removed under local anaesthetic as a minor op at my local surgery. There was a very small scar which has gradually faded over time and no further problems whatsoever. It's one of the easiest cancers to deal with and, remember, BCC is non-malignant as I understand it so stop panicking ( if that's what you are inclined to do!).

On Apr 09, 2016 11:46 AM Emmys wrote:

On Mar 26, 2016 3:49 PM ArgyDuBlew wrote:

Hi again, Well, I've had a very unexpected response from the hospital in Cardiff. They have sent me copies of everything connected with my stay there in 1957. This includes details of dates, times and duration of treatment as well as details of the actual dosage applied. This turns out to be 3000r spread over six days for a total duration of 17.4 hours. However, I don't yet understand enough about exposure, etc. to know if this sounds excessive or not. I'll need to do more research to understand it all.
Hi, I have just come back to the website as I have not been too well. You are so lucky to have got this information and I would be so interested in what you find out, please keep us informed.Take "" target="_blank" rel="nofollow">http://informed.Take " target="_blank" rel="nofollow">informed.Take care Emmys
Hello again, Emmys. I'm sorry you have been unwell and hope you're feeling a bit better. After my success with information from Cardiff, I tried to get information from the hospital which did the follow-up appointments when I was discharged. The upshot of this was an application form to fill in before they would even look for any records. As this also entailed an up-front fee of £30 with no guarantee of anything at the end, I decided not to bother as Cardiff had already kindly given me the most relevant information (and for free too!). The more you read this website, the more horror stories you find. We comfort ourselves by thinking that they were only doing the best they knew at the time but then come to realise how much 'I wonder what will happen if we try this' really went on. At least nowadays we are generally told what our treatment options are, and what the downsides might be! This website is just such a wonderful resource and it is so comforting to know that, as they say, we are not alone. All the best, Emmys.
Hi again, Well, I've had a very unexpected response from the hospital in Cardiff. They have sent me copies of everything connected with my stay there in 1957. This includes details of dates, times and duration of treatment as well as details of the actual dosage applied. This turns out to be 3000r spread over six days for a total duration of 17.4 hours. However, I don't yet understand enough about exposure, etc. to know if this sounds excessive or not. I'll need to do more research to understand it all.

I'll certainly keep you posted - I had no idea that this went on routinely, for so many different reasons and so widespread around the globe!

On May 21, 2015 6:27 PM dianemoot wrote:

On Aug 21, 2011 12:23 AM kbrown3986 wrote:

My sister was radiated for what I believe was a hemagioma in the mid 50's and developed thyroid cancer now in her mid 50's. We have been trying to research out what treatments were used on her and to what extent that her endocrinologist is asking "how did you receive so much radiation"? Does anyone know about the treatment of hemagiomas by radiation in the 1950's? We are the daughters of a Navy Mother and Father and think that this treatment was prformed on the North Island in Coronado, San Deigo USA where our father was stationed.

I had radiation treatment on my forehead hemangioma around 1958-1959 when I was between a year / year and a half old.  I have recently been told this was 'against doctor's advice' and really just to pacify my father's parents.

I guess I have always been baffled about myself and the things I do / allow to be done to me.  Wondering about the pre-frontal lobe and if damage from radiation could have been done in this area in such an early developmental time in my life.

This treatment was done in the Dayton, Ohio area.  As I said, it was done 'against medical advice'.  My research has shown that normally, hemangiomas are left alone in hopes of dispursal. 

I too have a hemangioma which is inside my mouth. This was treated with radiotherapy during the mid-50's when I was about 8. This took place at the Velindre Hospital in Cardiff, U.K. It had no obvious benefit and I suffered horribly afterwards with sickness and hallucinations. Like you, my mother was told that these lesions often disappear with time but it was done anyway. In my early 60's I developed a lump on my thyroid. The specialists described it as 'dodgy cells' and part of my thyroid was removed. I have just now discovered that the hearing loss I have experienced most of my adult life is also very probably due to my treatment - the audiologist says the high-frequency loss is very unusual and definitely not age-related. It is not easily helped by hearing aids although we are going to give it a try. My hemangioma is a source of constant pain or discomfort and was once punctured by a careless dentist - spectacular results and I thought my time had come until they managed to stop the bleeding. I am going to try to find information about my treatment as a child, but am not particularly hopeful.

Hello. I, too, have only just found this website and am finding the stories on it both comforting but so disturbing at the same time.

I am a 68-year-old male and was treated with radiotherapy in Cardiff (U.K.) as an 8-year-old during the mid-fifties. I had (and very much still have!) a haemangioma inside my mouth and I suffered about a week of daily treatments as I recall. The trauma of all this was made worse by the fact that we lived some 30 miles from the hospital and neither my mother nor any other relative was able to stay with, or even visit, me during this time.

The after-effects were unbelievable - raging headaches, hallucinations, etc. The physical benefit of the treatment was negligible and I cannot now understand why it was ever carried out as one of the specialists at the time told my mother that the haemangioma might well disappear naturally or at least reduce in size as I grew up.

In the event, it did not reduce but rather grew to the extent that much later into my adult life I underwent further treatment but using chemical salts this time and again the after-effects were again totally unexpected (to the surgeon) and very unpleasant. I again wonder if this treatment, too, was in the nature of an experiment. The surgeon's notes to my G.P. make interesting reading and include the phrase "I think I may have overdone it".

A few years ago when I was in my early sixties I discovered a small lump on my thyroid. My G.P. was very quick off the mark and sent me for an immediate biopsy. The upshot was that there were what the specialist called 'dodgy cells' present and half my thyroid was removed, so I am now on permanent thyroxine. The difference this drug made to my life was unbelievable and I found after a month or so that I was actually able to look forward to each new day rather than having to drag myself out of bed - I had assumed that everyone felt the same as I had done for a decade or more!

A long-standing hearing problem was investigated last week and the audiologist was puzzled at the peculiar loss of high-frequency hearing. After asking about my medical history, he was quite clear that my treatment as a child had caused the damage. I am awaiting hearing aids although the audiologist said that my particular type of loss is very hard to compensate for.

My problems are relatively minor compared to what some people have suffered and my heart goes out to anyone whose life has been marred or even shortened because of a very dubious form of treatment (or, perhaps, experiment, even).

I shall try to find out from the hospital involved if they have any records of what happened to me in the 50's but will not be anticipating any particularly helpful reply, if any reply at all.

Hello. I, too, have only just found this website and am finding the stories on it both comforting but so disturbing at the same time.

I am a 68-year-old male and was treated with radiotherapy in Cardiff (U.K.) as an 8-year-old during the mid-fifties. I had (and very much still have!) a haemangioma inside my mouth and I suffered about a week of daily treatments as I recall. The trauma of all this was made worse by the fact that we lived some 30 miles from the hospital and neither my mother nor any other relative was able to stay with, or even visit, me during this time.

The after-effects were unbelievable - raging headaches, hallucinations, etc. The physical benefit of the treatment was negligible and I cannot now understand why it was ever carried out as one of the specialists at the time told my mother that the haemangioma might well disappear naturally or at least reduce in size as I grew up.

In the event, it did not reduce but rather grew to the extent that much later into my adult life I underwent further treatment but using chemical salts this time and again the after-effects were again totally unexpected (to the surgeon) and very unpleasant. I again wonder if this treatment, too, was in the nature of an experiment. The surgeon's notes to my G.P. make interesting reading and include the phrase "I think I may have overdone it".

A few years ago when I was in my early sixties I discovered a small lump on my thyroid. My G.P. was very quick off the mark and sent me for an immediate biopsy. The upshot was that there were what the specialist called 'dodgy cells' present and half my thyroid was removed, so I am now on permanent thyroxine. The difference this drug made to my life was unbelievable and I found after a month or so that I was actually able to look forward to each new day rather than having to drag myself out of bed - I had assumed that everyone felt the same as I had done for a decade or more!

A long-standing hearing problem was investigated last week and the audiologist was puzzled at the peculiar loss of high-frequency hearing. After asking about my medical history, he was quite clear that my treatment as a child had caused the damage. I am awaiting hearing aids although the audiologist said that my particular type of loss is very hard to compensate for.

My problems are relatively minor compared to what some people have suffered and my heart goes out to anyone whose life has been marred or even shortened because of a very dubious form of treatment (or, perhaps, experiment, even).

I shall try to find out from the hospital involved if they have any records of what happened to me in the 50's but will not be anticipating any particularly helpful reply, if any reply at all.

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About ArgyDuBlew

Patient
Thyroid Cancer
Emotional Support, Radiation, Side Effects, Spiritual Support

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