Loading...

AvsHusband's Recent CancerCompass Activity

  • AvsHusband has replied to a post on the message board

    As a layman, it seems to me as long as the biopsy was negative that is good. If you are concerned about the ablation, get a second opinion from another OB/GYN, preferably a female. I cannot comment further as I am not a physician.

    June 26 at 11:58 PM view post
    • AvsHusband has replied to a post on the message board

      Please don't assume that because the symptoms are the same that the cause is the same. You are a unique human being, not one of many identical people turned out on an assembly line. Go to a knowledgeable OB/GYN and have yourself evaluated. If you fear it may be cancer, then go to an OB/GYN that specializes in reproductive system cancers to have yourself evaluated.

      June 26 at 8:46 PM view post
      • AvsHusband has replied to a post on the message board

        The diagnosis for an endometrial sarcoma depends on a biopsy. It is important that the pathologist be familiar with the appearance of endometrial sarcoma tissue to get a valid result. This is especially important in the case of undifferentiated endometrial sarcomas. You have had one biopsy that showed no sign of this form of cancer. If you do feel that it might be adenomyosis and your physician concurs and there is n...

        November 17, 2017 view post
        • AvsHusband has replied to a post on the message board

          I realize that you were asking for the original poster to contact you, but since you are doing research anyway don't forget to research endometrial sarcomas. It is an area that many physicians know too little about. There are some sarcomas that women can live with for many years when given the proper medication. One important thing is to not allow physicians to dismiss your concerns. Another thing you may encounter i...

          October 18, 2017 view post
          • AvsHusband has replied to a post on the message board

            I am not a physician so please don't take my comments as anything more than a layman's opinion. In my opinion there is good news and bad news. The bad news is that this disease is so rare that there is little research that is done on this. The good news is that the doctors may have caught it early enough to give your mother time. Time is the opportunity for a cure to be found, time is a chance for you to be with your...

            July 30, 2017 view post
            • AvsHusband has replied to a post on the message board

              I know that it is easy for me to say as I am not walking in your shoes, but worrying in advance of news just wastes your energies. The worrying will not affect the results one way or the other. Find some way to find peace within yourself while you wait. That will do you and your family the most good. Whether you are sent to an oncologist or not, it is most likely that you will have a hysterectomy. The only difference...

              August 28, 2016 view post
              • AvsHusband has replied to a post on the message board

                Ladies, The best advice I can offer you is that if you are unhappy with the way your physician is responding to your issues, then go to another physician. Keep changing physicians until you find one who will listen to you. Endometrial cancers are not common. Few physicians have been exposed to them in their training. Waiting is not treatment, it is wishful thinking that things will take care of themselves. Abnormal ...

                July 11, 2016 view post
                • AvsHusband has replied to a post on the message board

                  Offering this up to those who have tried everything else is one thing, but offering it up as a possible cure to those who have not tried everything else available to them can cause them to lose precious time in their search for a cure. I don't know whether this is illegal or not, I am not a lawyer. I just set this up as an information exchange because there was no other one when I set this up. I care about all of the...

                  April 30, 2016 view post
                  • AvsHusband has replied to a post on the message board

                    I don't know whether this will be of any comfort, but my wife was born with only one kidney. She was able to deal with all of the chemo they threw at her except the platinum based chemo. Word to the wise, the platinum based chemo will damage your kidney. This is a known fact. She only tried this when there was nothing else available. It did shut her kidney down.

                    April 29, 2016 view post
                    • AvsHusband has replied to a post on the message board

                      vicki777, Have you had the disease and tried this? Did it work for you? If not, please don't offer treatments unless you are a physician.

                      April 29, 2016 view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About AvsHusband

                      Caregiver
                      Gynecologic Cancer, Sarcoma, Uterine Cancer, Endometrial Cancer
                      Clinical Trials and Research, Conventional Treatments, Cancer Treatments

                      I am the husband (48 years and counting) of a woman who has just been diagnosed with high grade endometrial stromal sarcoma and I am looking for information about treatments that are available and hope. Unfortunately my wife's cancer claimed her on December 1, 2010 after 49 1/2 years of joy together. I wish all of you the best of luck as you continue the fight against this scourge. I will pass on my wife's motto "Never give up."

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.