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Baloo's Recent CancerCompass Activity

  • Baloo has replied to a post on the message board

    Thanks PhilipJax for posting these.

    3 hours ago view post
    • Baloo has created a new message board discussion

      I have four egg sized large lymph nodes across my gut, that ache  badlyfrom time to time especially after eating- probably because they are stretched. My doc gave me 2% ketamine cream to rub on them but it only worked so-so and was too expensive for the benefit. So I tried "Voltaren" cream which is dichlofenac diethylamine-  a NSAID (Non-steroidal anti inflammatory drug) in gel form used for back or joint/m...

      3 hours ago view discussion
      • Baloo has replied to a post on the message board

        Hi onlyif, I just scrape out a half teaspoon or so and just eat it right  out of the jar. It has almost no taste, it melts in my mouth almost immediately but does not make me gag-  it does taste vaguely of fresh coconut,  so it's really not unpleasant. Here's a pretty good article on the digestion of coconut oil and some case stories of people with bowel issues who have tried it : https://coconutoil....

        3 hours ago view post
        • Baloo has replied to a post on the message board

          Hi Babis, that's wonderful news, if the mannose is helping! Thanks for sharing. I figured it was in the probably- won't- hurt/might- help alternatives list  worth trying. I have it in bulk too, I just take it by the teaspoon- 4 grams a day. Tastes like icing sugar. I personally Haven't noticed a reduction in size of those bloated lymph nodes, but I think I do feel a bit better for it. I'm also taking cannabis o...

          4 hours ago view post
          • Baloo has replied to a post on the message board

            From my experience, all I can tell you is that I had symptoms long before anything was detected on an ultrasound. I had a weird strong pulse to the left of my navel years before anything showed up. Now I don't know if a CT scan would have picked it up sooner, but an ultrasound did pick up a 3x3.5 cm tumor a couple of years later in the same place the pulse was,  which did show up in the followup CT scan.There is...

            4 hours ago view post
            • Baloo has created a new message board discussion

              I have been having a lot of trouble with my gut, particularly so since I had a duodenal stent put in in August. Doctors have not been helpful, neither have antacids or digestive enzymes.  I even had my gut checked for bacterial infection and parasites. A certain food will be fine one day, then send me into orbit the next so I never know what to eat. The symptoms I have are a constant gnawing pain, alternating wi...

              Saturday at 2:28 PM view discussion
              • Baloo has replied to a post on the message board

                Davesgirl, I had the same issue, not much nausea but if I didn't vomit I felt absolutely awful- so I decided better to get rid of that nasty stuff than to suffer trying to keep it down.  Just be very careful to watch for dehydration and electrolyte imbalance particularly potassium. YOu can buy potassium pills over the counter, they are cheap, as well as electrolytes powder to add to drinking water and I  a...

                January 15 at 3:53 PM view post
                • Baloo has created a new message board discussion

                  Hello everyone, there's a pancreas symposium in New York which could be of interest.  Live 2-day CME symposium- The PancreasSymposium 2019 will review current controversies and procedures for managing complex pancreatic disease, both benign and malignant. Acute andchronic pancreatitis, pancreatic cystic neoplasms and pancreaticcancer are among the most complex cases that physicians are conf...

                  January 13 at 9:24 PM view discussion
                  • Baloo has created a new message board discussion

                    Hello everyone, there's a pancreas symposium in New York which could be of interest.  Live 2-day CME symposium- The PancreasSymposium 2019 will review current controversies and procedures for managing complex pancreatic disease, both benign and malignant. Acute andchronic pancreatitis, pancreatic cystic neoplasms and pancreaticcancer are among the most complex cases that physicians are conf...

                    January 13 at 9:19 PM view discussion
                    • Baloo has replied to a post on the message board

                      I should add, sorry for hijacking the thread. Back to the topic, my CA 19-9 levels were never that high- in the 200's at the start, in the 400's more recently but I have not had a test for quite a while so who knows at this point. During folfirinox the numbers dropped well below the magic 37 number but as soon as the folfirinox was discontinued, the numbers rose very quickly.

                      January 13 at 8:39 PM view post
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                      About Baloo

                      Patient
                      Pancreatic Cancer
                      Alternative Treatments, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments

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