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Bella117's Message Board Messages

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Thanks Katie...I just sent a request to join the FB page.

Hi Guys, I'm not knew to this site, but have not been on in over 2 years since my brother passed away from colon cancer and the age of 42 and my father with another cancer at the age of 60. Since my brothers dx. his siblings of course had to start undergoing colonoscopies, me at the age of 38, when I had my first, they found 5 hyperplastic polyps, no biggy, took them out, came back benign. A year later, 10 benign and my last in July they stopped counting at 20 (i beleive it was approx.25). My last colonoscopy was at the Mayo in Rochester and they did a chromenoscopy/Endoscopy and this is what I will have moving forward. After meeting with Genetics they wanted to start treating me as though I had Lynch syndrome, so had to undergo a lot of other tests, all good. Now since they are unable to test my brothers tumor to see where the mutation was, they now want to dx me as having Hyperplastic Polyposis Syndrome and beleive that my brother had this syndrome too putting his first degree relatives at a very high risk for developing colon cancer at a younger age, which apparently use to be considered very rare. It once was beleived that all hyperplastic polyps had zero chance of becoming cancerous, until now with this syndrome. So I have been told that it does not matter how many polyps they remove at one time, they are cumulative and they start to talk about a partial or full removal after 100....as of today with 3 colonoscopies I am sitting at 50....and the patter seems to be doubleing each year. Any one have any thoughts or know anything more about this syndrome? Thoughts and prayers are with you all!!

My dear brother lost his life to stage 4 colon cancer at the ripe old age of 42. My brother was diagnosed with stage 4 colon cancer at the age of 40 and lost his life at 42 on December 10, 2010. He had 2 young boys and my sister and I took them on a Spring Break Vacation to the Grand Canyon and along the way scattered a few of his ashes in places my brother always wanted to go  Whether that is right or wrong or illegal or not, we had one hell of a time and his boys were so connected to the idea that their father was along for the ride.....we are plannig to bury my brother this summer up north with his grandparents.......being Catholic, this was new to us and we do understand that he does need to be buried and layed to rest, but boy oh boy.....he's flying with the eagles and having one hell of a good time!

Peace to all of you and may god watch over and keep you!!!

Colleen

s/o Joe 7/5/67 - 12/10/2009

Exactly what Kathy said!!!!!!!!! And then do exactly what your dear husband wants, no matter how difficult it is, just do it!!! Life is far too short.....being a former caregive myself (to my brother and father) your life will go on.....sure it is difficult to do and go through with, later you'll understand the importance and you'll think back and be happy you did everything in your power that you could do.... Peace to you and may god bless you and yout husband.

xoxo Colleen

d/o & s/o the late Joe's.......

Jessica, If I have learned anything in the last 2 1/2 years of dealing with my brother and fathers care, it is to get a second or even third opinion. You're not going to hurt anyones feelings and if you do and they don't understand, tough....after all (with all due respect) they are "Practicing" medicine. If anything else, it should give you peace of mind and I pray that it is the lower grade, if it has to cancerous.

Colleen

 

Beth, I am so sorry for the loss of your father. I too lost mine on 2/17/10 and my brother 12/10/09, both far too young.

Hold on to all of the special times you had with him over these last 2 years, it truly was a gift that brought you closer,as weird as that seems, but that's what gets me through the day.

God Bless you and your family!

Colleen

Oh April.....Just keep telling your mom that you'll be ok and it is time for her to go.....She needs to hear that....my heart is breaking all over again and I am reliving my brother and fathers recent passings. May God take hold and keep your mother and god bless you and your family.

Colleen

 

Kathy, He is in good hands at the Mayo! I only wish my brother would have went there sooner. Good luck....Mayo rocks!

Colleen

I'm so sorry to hear this. My brother was dx with stage 4 colon cancer, and then it metastisized to the liver. I'm sorry, but once it hits the liver, progression is typically fast. My brother was only 42 when he lost his life, and he lived 5 months after it hit the liver.

Prayers to you, your family and your dear grandfather!

Colleen

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About Bella117

Caregiver
Brain Cancer, Colon Cancer
Cancer Prevention

My name is Colleen and I am the daughter of Joe Jr., who was dx. 12/08 with a GBM4 and the sister of Joe, dx. with colon cancer on 3/08. I lost my brother 12/10/09 and my father on 2/17/10 to their cancers. They may both be gone from this life, but are not forgotten!

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