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BigBlueBill's Recent CancerCompass Activity

  • BigBlueBill has replied to a post on the message board

    Hi Kelly, Thanks for the reply. I will join that group. I am now on monthly shots of Lanreotide. It has stopped the facial flushing straight away. I am not sure if it just helps with the syndrome symptoms or actually stops the growth/spread of the tumours. I have never heard of Chemo pills. Any side effects from those ? Regards. Bill 

    September 15, 2015 view post
    • BigBlueBill has replied to a post on the message board

      Hi Jodi. I see your post is old in 2007. How are things today ? I live in perth Australia and have just been told I have stage 4 carcinoid cancer with the syndrome. It is in my lower gut, liver and a lymph node. I have just started treatment with an injection of Lanreotide every 28 days. Operating is not an option at this stage apparently. I am male and 54 years old. The biopsy was low diff grade 1. Hope to hear from...

      September 12, 2015 view post
      • BigBlueBill has created a new message board discussion

        Hi, I have just started these 28 day injections for Carcinoid Cancer with Syndrome symptoms. I would love to hear from anyone who has had these or similar regular injections and how well they worked or not for you, and what if any side effects it gave you. Thanks, Bill, Westen Australia.  

        September 08, 2015 view discussion
        • BigBlueBill has created a new message board discussion

          Hi, I live in Perth WA. Three years ago I had a large Liposarcoma removed from my left thigh. Yearly scans of my thigh and chest followed. Recently the chest scan revealed concerns in my abdomen. A further abdomen scan revealed "several area's of concern " A biopsy from my groin has confirmed 8/9 carcinoid tumours. Most are in my lower gut one is on my liver and one in a lymph node. My surgeon has signed me off as fa...

          September 01, 2015 view discussion
          • BigBlueBill has replied to a post on the message board

            Hi Rob. I live in Perth Wa and also have carcinoid cancer with the syndrome. I have just been diagnosed in the last few days. I have tumours in my lower gut, one on my liver and one in my lymph node making 9 in total. My surgeon from Charlie Gairdiners has sent me to a cancer team for chemo no surgery yet. Not sure when the Chemo starts. Would like to hesr from you about your condition your treatments and how you are...

            August 31, 2015 view post
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            About BigBlueBill

            Patient, Survivor
            Other Cancer, Sarcoma
            Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diet

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