Loading...

Boobiie13's Message Board Messages

Loading...
Showing 1 - 10 of 5

Page 1 of 1

RE: Possible throat cancer

by Boobiie13 - April 19 at 4:59 AM

Did you send me a message?  Your post is from 2018.  This is what I got today.

RE: Possible throat cancer

by Boobiie13 - April 17 at 7:59 AM

Wow! Sounds like you went through hell! My sister had oral cancer. They had to cut into her jaw and everything. She is 7 years c free. I am starting to experience swallowing pain and my mouth burns. Everything tastes spicy and I don’t like spicy food. I got some stuff called magic mouth wash. Didn’t work the first time. Tried again tonight and it made my mouth feel better, but swallowing was still an issue. Thank you so much for talking with me. This is my first rodeo. I’ve spent so much time on the internet, learning what I can. I have read that a lot of people did not want to get feeding tube, only to end up with pneumonia. I didn’t want it either but I didn’t want to feel miserable and possibly be dehydrated and such. It was bad and I couldn’t imagine going through it now! Just got buttons off today and I have a little infection. Also I already have a lot of secretions from my trach. I still have to irrigate it. I told them how can I do that! I was in so much pain and coughing hurt like hell. They say some have a lot of pain and others sail through it. We were talking to a couple today in radiation. Her husband has colon cancer and she also has it. She was done with radiation two weeks ago. Now she has to wait a couple more weeks to find out the results. They live an hour and 1/2 away. They just drive each other there and back. And on top of that, his mother has it too. They can’t do radiation or chemo on her. Isn’t that wild! I told them that they should check the H20! So what did you take for pain? I’m on oxy. Just bought some hemp oil. I don’t like taking all those pain meds. Constipation! I’m starting to fall asleep. So,glad you are c free! Text soon! I appreciate it!

RE: Possible throat cancer

by Boobiie13 - April 15 at 9:57 AM

On Apr 15, 2019 12:23 AM Sdurnell wrote:

Boobie,

Good thing you kept at it!  I think we all need to listen to our instinct about these things.  

I hope your treatment is going well.  I want to caution you that when radiation fatigue sets in you may need someone else to drive you to and from your appointments.  I had a two-hour drive each way on snowy roads (Jan. and Feb.), and after a couple of weeks could not have safely gotten myself to and from radiation sessions.  My husband took off one day a week and friends filled in on the other days, for which I am exceedingly grateful and will never be able to repay them.

And best of luck with the feeding tube if you need to use it.  I tried going without one, but got pneumonia and lost so much weight that I gave in.  And am I glad I did--it saved my life.

All the best in the next few weeks and as you begin your long, slow recovery process.

Susan

Thank god for your reply! I have read most everything on here and they are dated from years ago. I have learned a lot on this site. I tried to sign into the America Cancer society. First time trying, it took me 45 minutes and I gave up. The next time it was the same thing. Every password was not right, nothing matched. After another 45 min, I gave up! They emailed me about a password and Imreplied that this was a joke! I just wanted some support, not having to jump through hoops to get it. I said people with cancer don’t want to waste any time. I had an easier time setting up a bank account! Anyways, I needed to vent about that. Would love to hear your story. This is all so new to me. I have had 8 rounds of radiation and 1 chemo so far. I am starting to feel the effects as it is getting harder to swallow. I have pain pills, but still am feeling the pain. From what I have read so far, the worst is yet to come and I am terrified! Any advice would be greatly appreciated! Thank you again! Barb

Pain swallowing

by Boobiie13 - April 15 at 4:39 AM

I am 8 radiation and 1 chemo in. I have larynx cancer. I am starting to experience pain while swallowing. Pain pills work a little. Need advice on what to take other than pills. I also have trach and feeding tube. Any ideas would be greatly appreciated.

RE: Possible throat cancer

by Boobiie13 - April 14 at 5:14 AM

I know this post is older but it may help someone else. Last year my husband and I had a upper respiratory virus that lasted for a couple of months. His went away but mine lingered. My throat was sore and dry. Tried a zpack and did nothing. The next time was another zpack and predizone. It seemed to help but then I got thrush in my throat. When that cleared, and I didn’t feel any better, I made an appointment with the ENT. Took awhile to get in. He scoped and saw a mass on my voice box. Did a ct to see if it was on the back side too. It was. He told me he couldn’t do a biopsy for a month. He had to go on vacation. I was mad and so was everybody else! ( I also ate bags of cough drops). Too many to count. We checked our insurance to see where else we could go sooner. That was a pain too cause some just wouldn’t do it. Finally got into another better hospital. In the meantime I was researching and it said that throat nodules have the same symptoms. I was being optimistic, even though I smoked for 40 years. My appt. was on a wed. so on Sun. I went out with my girlfriend cause I wanted to have fun all I could before my tentivly my life would change forever. We were out having fun, then all of the sudden, I could not breath. My friend didn’t know what was happening. After a few min. She knew what was going on. She threw me into her truck and away we went to the hospital. Luckily, it was not that far away. I was 2 minutes from death when I got there. My mass had cut my airway. I got transferred to the hospital that I was to have the biopsy. UW Madison Wi. Thank god! They put in trach, did the biopsy and it was cancer. Stayed 5 days and from there have been very busy. Into my 3rd week of treatment. 6 weeks radiation with chemo 3 times. Just had feeding tube placed. The cancer is only on my voice box. I have a wonderful team! Driving an hour each way 5 days a week. I believe my odds will be better, considering what had happened in my town.If you have doubts, do not wait! If you can’t get a biopsy in a reasonable time frame, fight until you do.
Showing 1 - 10 of 5

Page 1 of 1

Loading...

About Boobiie13

Patient
Head and Neck Cancer
After Treatment, Lifestyle, Support

We care about your feedback. Let us know how we can improve your CancerCompass experience.