Loading...

CaregiverPete's Recent CancerCompass Activity

  • CaregiverPete has replied to a post on the message board

    Misty's birthday is tomorrow.  I hope I can make it to tomorrow as well.

    October 06, 2018 view post
    • CaregiverPete has replied to a post on the message board

      Hi everyone  I'm doing better I hope everyone else is on an up swing.  I had a memorial seating bench made for Misty with her name, the date of her birth and the day if her passing. It is being proudly displayed and sat upon at my County Zoo.  The bench is facing the outside Flamingo exhibit, a place Misty loved to visit everytime we went to the Zoo.  I'm currently working on two more memoria...

      September 22, 2018 view post
      • CaregiverPete has replied to a post on the message board

        Hi Marge  It was the 3rd month yesterday for misty passing. I'm in bad shape. Life doesn't really mean anything to me. I dont see signs from Misty.  I dont dream of Misty. I dont feel Misty's presence in our home. My heart continues to hurt all day. I miss her so much. I can't keep it together anymore. I'm grieving in a doctor's waiting office right now making a fool of myself and making people feel uncomf...

        September 05, 2018 view post
        • CaregiverPete has replied to a post on the message board

          Lisa My broken heart goes to you. There are no words I can say that make any sense. You went through so much B.S. and you still hung in there. Your life force should mold the caregiver code that we all share. You sacrificed everything. And I mean everything. You put your whole life in a box and put it under lock and key. I'm glad you are free from caregiving.  I'm very sorry  Pete

          September 05, 2018 view post
          • CaregiverPete has replied to a post on the message board

            I mis my other caregivers too...  I mis you all terribly.  I mis all of your spouses terribly. 

            August 04, 2018 view post
            • CaregiverPete has replied to a post on the message board

              Hi wheatti 36 years of marriage is such a beautiful thing to hear. Just to think that over a third of a lifetime with someone ..... its so so precious.   I have to remind myself that the 29 years with misty was so precious. I love her, mis her and want to be with her.  I have to stay until my journey is over. Time will go by fast as did my 29 years with her.  I hope the best for your husband I hop...

              August 04, 2018 view post
              • CaregiverPete has replied to a post on the message board

                Hi everyone  Hope we are all here and living one day at a time. I said goodbye to my caregiver group...it was sad I said goodbye to my bereavement group.... it was also tough I still see my grief counselor.   I'm barely hanging on... I'm waiting patiently for this pain to end. Does it ever... ? No. Am I just prolonging the inevitable.... Maybe So I seriously think that if all of us just hung out fo...

                July 30, 2018 view post
                • CaregiverPete has replied to a post on the message board

                  Hi everyone. Miss you all.  Hi Lena  I'd love another dog or a little kitten. I have 4 golden retriever girls and Misty's racing pigeon "little Pete"  I will think hard about adopting a kitten.  I'm in a good place. A really good place. I'm being flooded with support. I'm so busy getting help with working on the house. Mom , both dad's, friends.... it's like weeks on end construction crew...

                  July 11, 2018 view post
                  • CaregiverPete has replied to a post on the message board

                    Hi everyone. Hi Mari... Thank you for reaching out and are now apart of us. Sending you my deepest and caring thoughts for you and in caring for your mother. I could never imagine at such a youthful age and going through what all of us have. ((Hugs to you Mari)) ----------------------------------------- I have to get this out............ Misty and I had a long long talk 3 weeks before she passed. In that d...

                    June 28, 2018 view post
                    • CaregiverPete has replied to a post on the message board

                      Thank you everyone. Patty Lisa Lena Carolyn Ray Gigi Marge Punky Thank you.....  Misty..... I love you.....

                      June 11, 2018 view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About CaregiverPete

                      Caregiver
                      Breast Cancer, Lung Cancer - Non-Small Cell
                      After Treatment, Cancer Diagnosis, Emotional Support, Lifestyle

                      My name is pete. I've been married for 18 years. My wife and I have been together for 27 years. High school sweethearts.

                      I've been a caregiver husband since her IDC breast cancer diagnosis in Nov 2014. My wife had grade 3 tumor, triple negative breast cancer stage IIIA, 25 pos+ lymph nodes. Double mastectomy, 4 rounds of chemotherapy (Adriamycin and Cytoxan), radiation.

                      And.....1.5 months later....

                      In January 2015 she was diagnosed with
                      Non small cell lung cancer, EGFR mutation stage IIA lung cancer. Upper left lobe removed. 4 rounds of chemotherapy (Taxotere and Cisplatin). Radiation, 12 months of Tarceva.

                      Totally Cancer free NED since Nov 2016.

                      Left lung Pleural Effusion drained Aug 15, 2017. 1500cc

                      PET scan Aug 16 2017 showed spots on bones....:(
                      Distant recurrence of Breast Cancer on bones and sacrum

                      Aug 2017 Started XGEVA - injection for bone density treatment

                      Aug 2017 Started XELODA oral chemotherapy for distant recurrence breast cancer. 8 pills a day for 2 weeks then 7 days off, repeat for 4 cycles.

                      Nov 20th 2017 PET scan shows XELODA didn't work :( wife won't have to take final round of XELODA.

                      Nov 28th 2017 started new chemotherapy. Eribulin IV push. 3 rounds...2 weeks on 1 week off.

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.