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Charlene_F_1's Message Board Messages

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Hi Christy, I just wanted to let you know that I have decided to have the radiation and I start it next monday, October 6, 2003. I had the simulation done today and thank you for telling me that I could breathe with it. I recalled what you said and I was less nervous. I also had a scan done with the mask on right after the simulation. Is that how they did you too? On Thursday I will have a scope of the esophagus done at the diagnostic scan part of the hospital. At that time they will put in the peg tube. I hope you are still doing well. Are you taste buds still returning? The doctor is going to give me the Ethol. They used to give you a shot but it is now put under the skin like a tb test. I live in Syracuse, NY and the place I will be seeing my doctors and having radiation is a new building in East Syracuse. Again thanks for all the info. Keep in touch. Char
Christy, Thank you so much for writing. What were some of the foods you could not eat while radiation and is there any now that you can't taste? What type of cancer is the one you had? Is it squamous cell? Several people I have talked to said they did not have the stomach tube. My radiologist and my oncologist both say it is the best way to be able to take nourishment if you have problems swallowing. Did it bother you to walk around with the tube in. I also have to have a minor test done before the radiation and wondered if you have to tape it in place or something. Sorry for all the questions but you are the first one who has responded to my message that is a woman and had their radiation recently. Were you burned much and did the face mask bother you? Again thanks and congratulations survivor. Char
I have had removed a cancerous mass next to my left parotid gland and I have been advised to have six weeks of radiation. This treatment would be five days a week. It would involve having a stomach tube put in in case I have problems swallowing. I would like to hear from women who have had this type of cancer and been given radiation. Please email me if you can give me info. Thank you Char
Hi Jan T. What kind of cancer did you have and was it the primary site? Can you tell me your age and if your oncologist agrred with your decision> I had squamous cell next to my parotid gland and it was a secondary site but they haven't found the primary site. I am scheduled for radiation therapy for six weeks at the end of this month. This was a very big but slow growing tumor and it was removed intact. I am thinking about waiting on the radiation and just have it watched and scans. Thank you for any info you can give me. Char
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About Charlene_F_1

Patient
Squamous Cell Cancer

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