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Claity's Message Board Messages

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Thanks Kathleen, has taken me awhile to reply because I must have picked up something that went to my lungs. Thought my time was up, but no, probably just a cold (wish I could do a smiley face here). Our paths seem similar and I wish I had forgone a biopsy. Think your doctor is really taking good care of you. My docs were convinced that it was actually a type of lung cancer and not mets, so I had surgery to see - but it was mets all along. Nodules were first discovered 5 years ago and they have grown slowly over time, now at the point of causing coughing and shortness of breath. A little pain here and there, but nothing spectacular. My doc wanted me to have SBRT radiation therapy but I declined, maybe more out of being tired of being in the medical system for so many years - 11 next month. I know there’s millions of others who have had it worse, so I’m not complaining, just explaining. The nodules do tend to expand quickly once a certain point is reached - I think, well, it’s just 5 mm, seems so small, then it grows to 10mm (1cm), larger and then boom, 2 centimeters. Just doubling but the geometry adds up quickly, once you reach that certain point. I’d love to stay in touch with you, we seem to be traveling a similar road? You seem to be wrestling with things I was wrestling with a few years back. Hope you are well too Kathleen.
Appreciate your help. But you know I’m not waiting for death, I’m preparing for death. There’s a difference.
Hi Kathleen. Sorry it’s taken so long for me to reply, but I notice that you’re appointment is today. So let me know how it went...Didn’t have Whipple, looks like it will be the mets that take me in the end. But my oncologist told me that’s typically how it works. Best of luck today.
Ah sorry, wasn’t clear. I’m not on chemo yet, just trying to decide if chemo is worth the attendant problems. Dr said statistically it would add 4 months, which doesn’t seem like a long time in exchange for being sick all the time. Anyway, cross that bridge when it hits me :). Thanks for being here, I know many appreciate it.I’m 73 btw.
My nodules also grew very slowly, were first seen in 2014 when I had a scan for something else. They’ve been very slowly growing. Isn’t it interesting how slow they grow, when cancer in the pancreas seems to explode. It’s true there’s very few of us out there with lung mets from pancreatic cancer, that’s why I asked. Looks like we’re in the same boat. I will update you when I find out anything about mine. And congrats for surviving the Whipple :). Best of luck (to us both) Claity
Thanks, sorry for the long time in replying. I thank you so much for the info, but truly I am just too tired to try to fight for it, which I would have to do. But i’m Happy it worked to you. Claire
Hi Punky. Thanks for the reply, and you don’t ever have to apologize again - look how long it took me to answer you back. What you have said is very helpful, so hard to balance whether chemo is worth it. From the outside, I don’t think so, but I sure do understand those people who just want a little longer. I am talking with Hospice at the moment and waiting for scans and bloodwork in a month or so. Then we shall see. I appreciate you being here. My Dad used to call me Punky when I was little, so I always smile when I see you’re on a thread. Thanks for helping...all of us. Claire
Well I’m sorry that you lost your husband but truly appreciate that you’re taking the time to help me through this. The lung mets didn’t make me uncomfortable until lately when I’ve had definite problems getting enough air into my lungs. Someone on another thread also told me that her mother had mets like this but it didn’t slow her down until two weeks before she died, so his story is very similar and makes me feel a whole lot better, looking down the road at what will happen to me. Thank you so very much for replying.
Such good news for you that they are shrinking. Thanks for such a detailed reply, those help so much. Is the pulmonary function test just a diagnostic tool or is there some intervention/treatment that it leads to? I did research low dose naltrexone when I was first diagnosed but haven’t thought of it in years. Will your doctor prescribe it or did you have to go elsewhere? I certainly would like to be more comfortable and if that would help, it would be welcomed. Thanks so much.
Your mom sounds like someone I would have liked to have known and I’m sorry that you lost her. Thank you so much for sharing your time with me. I’m not on chemo and don’t know if I will go on it. Do you think it made her last days better or was she really ill because of it? I’m wondering if a few more months of life is the worth the trade off of being sick the whole time. I have growing pan can mets in my lungs and they’re not huge - 4-5 cm, two of them, one in each lung. I did have surgery to remove the left tumor but it just grew back and I should still feel ok according to my oncologist but I don’t. Last visit my oncologist suggested I look into hospice care. My goal is to pass just like your mom, at home and peacefully. So it’s very good news to me that it’s a possibility. Thank you for your wishes, but I think my days a fewer and fewer and that doesn’t really bother me a whole lot. We all die and I’ve been dealing with that possibility for so long now that death almost seems like an old friend. I’m just hoping my death is a good one. Thanks for the support.
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