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ClarenceY's Recent CancerCompass Activity

  • ClarenceY has replied to a post on the message board

    My goodness, I’m not sure where to start. You are certainly not being treated fairly. I am a 7-year survivor of stage-4 head/neck cancer, and I know only so well that cancer is a lonely experience. Let me start by saying that you have to look out for #1, no matter what happens to those around you. Have a frank and open conversation with your son. Tell him that he is welcome to stay in your home, and so are hi...

    May 13, 2015 view post
    • ClarenceY has replied to a post on the message board

      Hi- My heart reaches out to you and wish so much that I could say something that would help. You have been through a lot the past several years.  I’ll admit, I have never heard of Thymic Carcinoma. Have you ever looked atwww.thymic.org. I am a 7-year survivor of stage-4 neck cancer that had spread to the lymph system. The doctors now say that I am cancer free. One doctor wants to see me every 12 months...

      July 29, 2014 view post
      • ClarenceY has replied to a post on the message board

        What a shame. Hospice services have become a big business where the hospice organization is paid a fixed fee per patient-day for providing service – the fee depends on the service level. However over half of all hospice organizations are still nonprofit. I did some research last year because we needed hospice for my sister-in-law. I am also familiar with hospice for my father some years ago. The hospice moveme...

        June 20, 2014 view post
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          • ClarenceY has replied to a post on the message board

            Kim Humor is important, both for you and your mother. I visited the (teaching) hospital 70-80 times during the first 5 months, and had a good laugh there during every visit, and managed to spread some humor around the hospital during every visit. I tried my “pity me” routine after the first few visits – a radiation oncology nurse took me into the children’s section and showed me just how fort...

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            • ClarenceY has replied to a post on the message board

              The thing I don’t like about this web site is that here is no spell checking, and I am not a great typist – I always look back and think, wow they must think I’m a clod! I wanted to follow up a bit more on attitude that Aoife mentioned, especially the attitudes of people around your mother. I have been there and speak from experience – occasionally I would get around someone that was negati...

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              • ClarenceY has replied to a post on the message board

                Yes, Cisplatin was tough but I always knew there was light at the end of the tunnel. As you entioned, I was nauseous, had low blood counts, major weight loss, also some loss of hearing, tingling of foot nerves and finger tips -- all were expected. I was affected much more by the radiation, about 20 minutes every day for two months. I choose not to have a trac or feeding tube and the doctors followed my wishes; for be...

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                • ClarenceY has replied to a post on the message board

                  Hi- I'm coing in a bit late and don't want to confuse you but did want to pass along my experience. Mine was stage-4, base of the tongue at the entrance to the esophagus, and had spread to the lymph system. My treatment was 7 X Cisplatin and 40 X radiation at the same time. Everything was at a teaching hospital (great decision). Someone scheduled a CT for 2 1/2 months after last radiation - ENT told me aft...

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                  • ClarenceY has replied to a post on the message board

                    You are fortunate to find this site now - I had stage 4 at the base of the tongue 6 years ago but just stumbled across this site 4 years ago. Mentioning the tumor board implies that your partner is being treated at a hospital, perhaps even a teaching hospital. That's good; everyone should be so lucky. Stage 4 is tough, but your partner can beat it and thrive for many more years - I'm 68 and in better health and condi...

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                    • ClarenceY has replied to a post on the message board

                      Hi Ryan-- I am almost 6 years out of treatment for stage-4 Squamish cell carcinoma (SCC) at the base of the tongue, that had spread to the lymph system.  SCC can only start in a place exposed to air (skin, mouth, nostril, throat). The treatment was 40 Rads, concurrent chemotherapy, then followed by surgery (radical on right neck, partial on left neck).  I lost about 70 pounds. I was treat...

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                      About ClarenceY

                      Survivor
                      Head and Neck Cancer

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