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Cristiana's Recent CancerCompass Activity

  • Cristiana has replied to a post on the message board

    Hi everyone, dealing with the exact situation right now. Dorctors gave IV, Zofran + Digesan + Plasil for vomiting. Decadron 24 mg ( it was 8 mg ) no morphine as no pain so far ( hope none comes ) . Pluus Valium after a seizure today, fever etc.. I HATE GBM It is a fast growing tumor, slow enough to make the suffering a real torture God bless u all Cris

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    • Cristiana has replied to a post on the message board

      Dears Ilovemybear and Siblingof I could have written this post myself... SO difficult to image what our loved ones are going through, we could only image... If it would possible to share the pain and fear I am sure we would do it Cris

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      • Cristiana has replied to a post on the message board

        Dear Nanabeeman , So sorry for your sisters, OMG ! Have they been on genetic tests for any syndrome like LiFraumeni ? Send you my sincere best wishes and prayers Cris

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        • Cristiana has replied to a post on the message board

          Siblingof I am also sibling of a wonderful brother and I love your posts Bless you and your sister Cris

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          • Cristiana has replied to a post on the message board

            I know of Li Fraumeni Syndrome that causes many kinds of cancer in the same family ( genetic disorder ) including GBMbecause of a failure of PT53 gene. A test for this gene should be done All the best Cris

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            • Cristiana has replied to a post on the message board

              Dear Jon congrats and lots of new clean scans, it is possible ! We are 24 months from surgery with 2 recurrence but had stable MRI today, it's an unhappy -happy day  best Cris

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              • Cristiana has replied to a post on the message board

                Dear I Love Gary When there is too many cases of cancer in the family is good to do a genetic test about Pt 53, talk to his doctors about it. Other people from his family can have benefits if , God fotbid , anyone lacks this gene that protects us against tumor ( Li Fraumeni ) Lots of luck Cris

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                • Cristiana has replied to a post on the message board

                  Dear Fight56, same thing here and unfortunately was tumor regrotw related in our case. Spinal fluid spread.... I heard it is rare, so very sad All best to your Mom ! Ask everything to her doctor at tjis point, we can hamr them with lots of love but with our ingnorance in the matter.... Cris

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                  • Cristiana has replied to a post on the message board

                    we had 16 months in a row, then stoped for 3 months and had a recurrence, back to temodar, everything wonderful , when stopped, another recurrence, back again ! Temodar can work wonders for some people,fingers crossed here hoping it will work again ! best to you all Cris

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                    • Cristiana has replied to a post on the message board

                      Wonderful news , cheers !!!

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                      About Cristiana

                      Caregiver
                      Brain Cancer
                      Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diagnostic Imaging, Diet, Emotional Support, Genetics, Lifestyle, Radiation, Side Effects, Spiritual Support, Supplements, Surgery

                      I live in Brazil my brother was diagnosed with GBM 6 months ago. Hoping for many,many years ahead, hoping you all have the same !
                      June 2012 - 22 months from surgery ( one recurrence )

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