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Daisy17's Recent CancerCompass Activity

  • Daisy17 has replied to a post on the message board

    This cancer is damn hard to figure out! My husbands blood work came back good except one thing. I think it was called Cdx2? So for us it was the biopsy and scans and they barely found anything. After a CT, MRI, colonoscopy, endoscopy, capsule endoscopy, it was the octreotide scans that found 1 2cm tumor in his liver and one enlarged lymph node in his mesentery. Next stop, exploratory laparoscopic surgery where they e...

    September 14 at 1:30 PM view post
    • Daisy17 has created a new message board discussion

      Hi. I’m new and having trouble finding anyone to talk to about my husband’s cancer. He is 57 and works construction. He began having pains that relate to inguinal hernia. Had a CT, no hernia but small mass in liver. After MRI, they did a biopsy and confirmed a 2cm stage 2 well differentiated NET. Then told us that there is more cancer somewhere in his intestines. After colonoscopy/endoscopy, capsule endoscopy, and oc...

      September 14 at 1:16 PM view discussion
      • Daisy17 has replied to a post on the message board

        Piobaire, after my husband’s biopsy came back positive our GP set us up with an oncologist who set us up with a gastroenterologist. His cancer is in his intestines with 1 liver NET. It pretty much snowballed after that. Before we knew it we had 7 doctors and 3 radiologists. We were going to a local hospital and those doctors set us up with a specialist about an hour and a half away. We also had slides and scans evalu...

        September 14 at 1:10 PM view post
        • Daisy17 has replied to a post on the message board

          Janey, yes 2nd, 3rd, 4th opinions and then some. After surgery the oncologist decides on further treatment, but they (several doctors) say that if they get it all during surgery then just scans for the rest of his life. I guess we won’t know until they get in there. We were told by several doctors that chemo doesn’t work on slow growing NETs. They also said PET test not the best for neuroendocrine cancer. The Octreo...

          September 14 at 12:54 PM view post
          • Daisy17 has replied to a post on the message board

            I guess we’re lucky. University of Florida teaching hospital. We’ve got one of the best conservative cancer surgeons out there. He has a team of 7 doctors/specialized radiologists and every case has to go before the tumor board before surgery is agreed upon and scheduled. Keep looking for doctors you’re comfortable with.

            September 14 at 12:31 PM view post
            • Daisy17 has created a new message board discussion

              Hi. I’m new and having trouble finding anyone to talk to about my husband’s cancer. He is 57 and works construction. He began having pains that relate to inguinal hernia. Had a CT, no hernia but small mass in liver. After MRI, they did a biopsy and confirmed a 2cm stage 2 well differentiated NET. Then told us that there is more cancer somewhere in his intestines. After colonoscopy/endoscopy, capsule endoscopy, and oc...

              September 11 at 12:08 PM view discussion
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              About Daisy17

              Caregiver
              Other Cancer

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