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DalAnderson's Recent CancerCompass Activity

  • DalAnderson has replied to a post on the message board

    The Carcinoid Cancer Foundation shows Dr. Goldberg at The James specializing in colorectal NETS, which probably isn't your tumor location, but it's a start. http://www.carcinoid.org/patient/treatment/find-a-doctor?state=Ohio&country=United%2BStates#Ohio To be on this list and highlighted in light blue, the physicians have to have had 10-20 years seeing NET patients, published, and treated over 100 patients....

    December 04, 2015 view post
    • DalAnderson has replied to a post on the message board

      Some have tried without much success. Studies show your survivability improves dramatically if the primary tumor site is located and removed.  This is typically a long battle of years of managing. There is no cure to neuroendocrine cancer short of finding it early and removing it all.  Most are late diagnosed and don't have that luxury.  I know... not what you want to hear, but I'm giving it to you st...

      December 04, 2015 view post
      • DalAnderson has replied to a post on the message board

        Get your pathology reports. If it is positive...do not stop, find a NET specialist as this is rare and many doctors have never seen a case in their practice life..There are a number of tests that can be done to check for metastases. See the Carcinoid Cancer Foundation website for a list of specialists. 

        December 01, 2015 view post
        • DalAnderson has replied to a post on the message board

          You can read up on this on the Carcinoid Cancer Foundation website. Good for you for listening to your body. Also www.nanets.net, look for their Consensus Guidelines. If you're late diagnosed, you're not alone. I would highly recommend seeing a NET cancer specialist of which there are maybe 20 in the country. Tests: ChromograninA, pancreastatin (performed at Inter Science Institute -also read their book online), seru...

          December 01, 2015 view post
          • DalAnderson has replied to a post on the message board

            You can read up on this on the Carcinoid Cancer Foundation website. Good for you for listening to your body. Also www.nanets.net, look for their Consensus Guidelines. If you're late diagnosed, you're not alone. I would highly recommend seeing a NET cancer specialist of which there are maybe 20 in the country. Tests: ChromograninA, pancreastatin (performed at Inter Science Institute -also read their book online), seru...

            November 30, 2015 view post
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