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Dchepul's Recent CancerCompass Activity

  • Dchepul has replied to a post on the message board

    Although there was no tumor growth, ask them about edema. Swelling in the brain is very commom after radiation and during radiation. Ask if he is on steroids and what dosage. Sometimes its needs to be increased to off set the swelling. Second, where was the tumor? Tumors in left frontal lobe can cause depression and if there is swelling it could be pressing on this section of the brain. Most doctors will describe an...

    May 28, 2015 view post
    • Dchepul has replied to a post on the message board

      My husbands is deep in the right temporal area now on top of the Uncus area.  He had three grand mal seven weeks ago and weas in hospital for a week and declined a lot. I brought him home after a week on hospice.  Since then he has bounced back so much that I stopped Hospice and he is on Avastin only now.  They will not do the chemo because it pretty much stopped working back in December...

      May 21, 2015 view post
      • Dchepul has replied to a post on the message board

        Based on his symptoms he seems to be doing better then expected. Why did they give him 12 weeks to live? Where is the tumor? Based on the speaking issues sounds like it might be left frontal or temporal. My husbands was right frontal with midline shift due to edema. That was almost three years ago. It is now bifrontal, corpus and right temporal. The Temodar was the rough one for him. It caused bad constipation so ple...

        May 21, 2015 view post
        • Dchepul has replied to a post on the message board

          John, this past September my husband was put on Avastin and Carboplatin. Now he had been on Avastin with other chemos for over two years but the carbo was added due to tumor basically exploded very quickly like yours while on Avastin and CCNU. His MRI 8 weeks after starting the new treatment it was stable and actually looked better in some areas. It stayed stable for the next 6 months and you can say it still is in s...

          May 19, 2015 view post
          • Dchepul has replied to a post on the message board

            Sorry you are here. My husband is 45 and we are almost 3 years out from dx. Almost all the symptoms you described is my husband. He has no motivation. Will eat when I bring him food but no initiative to get it himself. Has daily seizures. I have to make him take a shower and to remember to drink. He still,has a positive attitude just lacks all emotions. He has memory and confusion issues. Has issues with days and tim...

            May 14, 2015 view post
            • Dchepul has replied to a post on the message board

              We went to Duke and had nothing but excellent care. But we did nit go to them until my husband had his first recurrence but we have friends who went there from the beginning and loved it. We had to drive 8 hours to get there but worth every minute we spent there. Best wishes moving forward.

              May 03, 2015 view post
              • Dchepul has replied to a post on the message board

                Amen! My husband was dx at the age of 42 two years and ten months ago. He has NEVER let go of his positive attitude and spirit even with all the tumors popping up and progression. Three weeks ago he suffered a grand mal for the first time. It landed him in ICU and the hospital for a week. At that time, it was decided to bring him hime on Hospice. I did that and surprise, he has bounced back so much its almost like he...

                April 25, 2015 view post
                • Dchepul has created a new message board discussion

                  Husband has been on CPT 11 and Avastin for over eight months. Carboplatin added to the mix once a month. During all this time, he has never suffered from more then fatigue. He has had diarrea a total of three times during all eight months and each of those times it was right after treatment. Now, this weekend, he has had two episodes. Each consisted of a major accident. Once at a party Saturday night with friends and...

                  March 23, 2015 view discussion
                  • Dchepul has replied to a post on the message board

                    Believe me, it is so easy to get disappointed when everything you try the cancer keeps going. My husband, at the age of 42 was dx with GBM right frontal lobe. Had surgery first time with 95% removal. This was in June 2012. Today, he is on his 7th different chemo/treatment combo. He has done 2 clinical trials at Duke. One of those kept him stable for 10 months. Many people on this board have their chemos changed up a...

                    March 16, 2015 view post
                    • Dchepul has replied to a post on the message board

                      Yes, we have heard that. My husband has been on Avastin and some sort of chemo for two years now. The chemo is switched up when the cancer progresses or a new tumor pops up. Just a few weeks ago, after MRI showed the cancer has progressed passed through the corpus and to the left frontal lobe, our doctor said he may have to stop the chemo but he will keep the Avastin going. His exact words were, " The cancer will exp...

                      February 18, 2015 view post
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                      About Dchepul

                      Brain Cancer
                      Cancer Diagnosis, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Emotional Support, Side Effects, Spiritual Support

                      My husband ,at the age of 42 ,was diagnosed with GBM of the right frontal lobe. After 95% removal, he did the standard treatment of radiation and temodar. Temodar failed about 8 months later. We decided to go for clinical trials at Duke. The first clinical trial he made it 10 months before a new tumor popped up in the center frontal lobe. A second trial was started but there never was any improvement and MRI showed possible progression. After 3 months on this trial he was taken off and currently on CCNU and Avastin. As of July 2014, he has completed one cycle of this treatment and waiting on next MRI to see if he can continue.

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