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Delhi's Message Board Messages

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Hello Wanda!

Kind reminder for your reply.

hello wanda! 

could you tell me what is the process to enroll in the clinical trial for pembrolizumab? duration? its cost? and other relevant nitty gritty? As in my country, India, Ramucirumab + paclitaxel is the last line of FDA approved treatment. therefore, we need to hope for the best and be ready for the worse.

RSVP

Best wishes

Aditya :) 

On May 29, 2018 5:27 PM Wickedinns wrote:

On May 26, 2018 11:59 AM Delhi wrote:

On Dec 22, 2016 7:15 AM Ellieandcarl wrote:

my husband has just been diagnosed with Esophageal Cancer stage 4 and we just found out that there is 3-4 large tumours on the liver that are also very aggressive he is only 39 years old and we are devastated and they said they are not going to operate and just go straight to chemotherapy. IS THAT IT just wondering is their any survivors or anyone I can speak too. ??

Hello Ellie, my dad (56) was initially diagnosed with stage 3 Get junction ADENOCARCINOMA. He was given neoadjuvant chemotherapy pre and post surgery. Post surgery he was given 28 fraction of radiation combined with 2 cycle of 5fu chemo cycles. After being cancer free for 4-5 months, we discovered few lesions in liver to be cancerous and also one inguinal lymph node. Currently, he is diagnosed with stage IV adeno carcinoma with metastasis in liver and inguinal lymph node. Doctors have started new targeted therapy Ramucirumab + paclitaxel because our her2neu test was negative. Prognosis at this stage is extremely poor but we are still fighting. Just like you I am also looking for survivors of stage IV. I hope you and your family sail through it. Do let me know the status of your husband? 

Hi My husband was dx March 2016 with adenocarcinoma, Mets to the liver, swollen adrenal gland, swollen lymph node and a possible spot on lung. He did the palliative chemo regime which failed and had six rounds of ten radiation which had to be stopped because he totally blocked and could not swallow his own saliva. He is also HER 2 negative. He ended up with a stent which was scary because it limited the chemos he could have. During all this the oncologist kept pushing sugary food which went against my grain totally. Anyway... in August 2016 I started really pushing healthy eating, walking and really searched for more answers. We put him on high doses of THC cannabis caps and then in October we went to see if he qualified for a clinical trial for keytruda (pembrolizumab). While doing the tests they had to do another scope and low and behold his stent came right out and did not have to be reinserted !!! We were having some progress !!! Now after 20 months he is doing very good. He hasn’t had any sign of tumour since January 2017, and has only a small spot on liver which they now think may be scar tissue. He is still very skinny but eating healthy. All I can say is...never, ever give up, stay positive and LIVE !!! Good luck and happy trails...

That's a good news !! Finally, some positive response. Even my dad has lost 25+ kgs and above all Because of esophectomy his Intake ihas become limite, but we are trying to provide him multiple small meals despite many sideffects of chemo.

Radiation btook a major toll on his body. Post that we limited his sugar intake and added multiple food with Rich antioxidant properties, protein and macros. We have also recently started giving him alkaline water to balance his toxicity from the treatment.

I have few questions

Did your husband take Ramucirumab (cyramza) in targeted therapy + chemo (palliative regime)

Did you get enrolled for the clinical trials for keytruda? If yes is still going on? If not then which part of the treatment was effective in remission and disease control and what kind of treatment is he undergoing at present? 

Sry for being so inquisitive, though I  am trying  ro be strong and hopefull but at the same time i m extremely worried and traumatised by this whole process. I hope you will understand.

my dad (56) was initially diagnosed (September 2017)with stage 3 Gej junction ADENOCARCINOMA. He was given neoadjuvant chemotherapy( 3 cycle  of ECF) pre surgery. Post surgery he was given 28 fraction of radiation combined with 2 cycle of 5fu chemo cycles. After being cancer free for 4-5 months, we discovered few lesions in liver to be cancerous and also one inguinal lymph node. Currently, he is diagnosed with stage IV adeno carcinoma with metastasis in liver and inguinal lymph node. Doctors have started new targeted therapy Ramucirumab + paclitaxel because our her2neu test was negative. Prognosis at this stage is extremely poor but we are still fighting.

I am looking for survivors and people who are still fighting this dangerous carcinoma, and also patients who have used this drug Ramucirumab for advanced oesophagus adenocarcinoma. Please share your experience because all doctors give very depressing data for this type of cancer.

On Dec 22, 2016 7:15 AM Ellieandcarl wrote:

my husband has just been diagnosed with Esophageal Cancer stage 4 and we just found out that there is 3-4 large tumours on the liver that are also very aggressive he is only 39 years old and we are devastated and they said they are not going to operate and just go straight to chemotherapy. IS THAT IT just wondering is their any survivors or anyone I can speak too. ??

Hello Ellie, my dad (56) was initially diagnosed with stage 3 Get junction ADENOCARCINOMA. He was given neoadjuvant chemotherapy pre and post surgery. Post surgery he was given 28 fraction of radiation combined with 2 cycle of 5fu chemo cycles. After being cancer free for 4-5 months, we discovered few lesions in liver to be cancerous and also one inguinal lymph node. Currently, he is diagnosed with stage IV adeno carcinoma with metastasis in liver and inguinal lymph node. Doctors have started new targeted therapy Ramucirumab + paclitaxel because our her2neu test was negative. Prognosis at this stage is extremely poor but we are still fighting. Just like you I am also looking for survivors of stage IV. I hope you and your family sail through it. Do let me know the status of your husband? 

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