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Dharma56's Recent CancerCompass Activity

  • Dharma56 has replied to a post on the message board

    Hi I am a bit over 12months post op full thyroidectomy.  It has been a roller coaster ride with calciatrol and calcium and my parathyroids are just beginning to kick in properly. I also have laryngeal palsy on one side from op which endos don't have any advice. I have asked my doctor to send me to a speech therapist as to which I am waiting for appointment. My life since my op has been up and down with symptoms ...

    April 11 at 9:18 PM view post
    • Dharma56 has replied to a post on the message board

      Thankyou so much for the link it was very informative. I am going to send it to my GP as she is very interested in New ideas.

      April 11 at 9:04 PM view post
      • Dharma56 has replied to a post on the message board

        Thankyou for your reply, sorry I haven't been on here for a while.  My TSH is 0.5 my Endo says that is where he wants it to be.  I am taking 150mg if thyroxine 6 days a week and have Sunday free.

        April 11 at 8:55 PM view post
        • Dharma56 has replied to a post on the message board

          Hi Bondi, I am 12 months post op and I was told to massage about 3 weeks after with light pressure with two fingers. If the lump persists get an ultrasound.  Regarding the voice,I still have gained full range in my voice, I am not a singer but a friend of mine who is tells me to keep practicing the high notes whenever I can and retrain the vocal cords. Good luck on your journey 

          January 10 at 9:21 PM view post
          • Dharma56 has replied to a post on the message board

            Hi , just curious about your first cancer where you said it was encapsulated.  Was it ectopic . I had an encapsulated ectopic thyroid cancer 3 years ago and 3 weeks ago another mass was found in a similar area so I had a total thyroidectomy and neck dissection 

            December 28, 2017 view post
            • Dharma56 has replied to a post on the message board

              Changes in my nails , ridges etc skin dry and flakey similar to hypothyroid symptoms 

              December 20, 2017 view post
              • Dharma56 has replied to a post on the message board

                Thankyou for your reply, I will look into a good physio therapists. I am not having RAI as my pathology came back cancer free despite 5 top cancer surgeons telling me my cancer had returned.  So i pulled a miracle out of a hat. In saying that they can now keep an eye on my thyroglobulin levels just in case of reoccurring lumps 

                December 19, 2017 view post
                • Dharma56 has replied to a post on the message board

                  Hi , my throat on occasions was going into a spasm when eating , my blood pressure was always high and constant headaches. They told me the swallowing thing wasn't related, but it went away after my first op , and it started up again a few months ago and that is how the second lump was found because my doctor sent me for a CT

                  December 19, 2017 view post
                  • Dharma56 has replied to a post on the message board

                    The ideal would of been 3 year ago to have taken the thyroid out , that way the thyroglobulin level can be checked for any reoccurring cancer. 

                    December 11, 2017 view post
                    • Dharma56 has replied to a post on the message board

                      Just had a total thyroidectomy and necj dissection of lvel 2,3,4,5,6.  Pathology has come back there is no cancer anywhere in the thyroid or in the growth that had grown back. Specialist is mystified, the lump contained only thyroid tissue.

                      December 11, 2017 view post
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                      About Dharma56

                      Patient
                      Thyroid Cancer

                      I was diagnosed in 2014 with an ectopic thyroid carcinoma.
                      Had surgery to remove tumour and still have thyroid intact. They have just found another mass in my neck and waiting to see specialist

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