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DianaPB's Message Board Messages

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I am also interested in hearing any experience with nivolumab + cantozatinib trial.

Thanks.

RE: Anyone used Keytruda

by DianaPB - March 14 at 1:12 AM

On Feb 28, 2019 3:55 PM djthx wrote:

Hello,

I've been on Nivolumab (Opdivo) - another PD-1 inhibitor, for 4 and 1/2 years now.  I was dx stage 4 gastroesophageal, and currently, there is ned.  I suggest you look at (and continue to research) this article:

https://www.uchicagomedicine.org/forefront/cancer-articles/2 018/january/specific-microbes-in-digestive-tract-can-boost-success-for-cancer-immunotherapy"" target="_blank" rel="nofollow">https://www.uchicagomedicine.org/forefront/cancer-articles/2 target="_blank" rel="nofollow">https://www.uchicagomedicine.org/forefront/cancer-articles/2

All the best,

Edwin

Hi Edwin, Thanks the article you suggested in this post We are trying them now, specifically Cottage Cheese and Flax Seed Oil. Fefir Goat Milk. My husband works with a nutrienist who will based in on my husband biomarker from blood sample to make recooomendations I guess that is similar to what you have mentioned about minerals and elements. Hope it will work. Best wishes to you. Diana

RE: Anyone used Keytruda

by DianaPB - March 13 at 11:47 PM

On Mar 02, 2019 12:18 PM djthx wrote:

Hi Diana,

What medication is he currently on?  If it's some type of chemo, then I suggest fasting.  Of course this is dependent on his weight.  If u research (this means googling only science-based articles or reports) fasting + cancer or fasting + chemotherapy, you will find how effective fasting is in our battle.  And this is also discussed in Dr. Nasha's book.  

Curcumin turmeric, another one 9f my mainstay supplements, is an antioxidant and anti inflammatory, and has also shown to have anti cancerous properties.  It's also a blood thinner, so if he's on blood thinners, it might not be a good idea.  Furthermore, turmeric has also shown to be synergistic with certain chemos (Google it).

Edwin

Hi Edwin, I so appreciate your suggestions on things that help treatments. Some are new so we did some readings to understand them My husband is on immuno Therapy. About probiotics, you are right and we learned two old people in our friend circle that have taken them without medical treatments to recover from nearing dying situation. We plan to take Flax seed oil plus cottage cheese. What probiotics and brand you are taking? Keep positive and relaxed spirit will help immuno work. Some docs mentioned this too. We also like the idea of nutrients, like fresh fruit and veggie juices during treatment. Hope you continue doing well! Diana

RE: Anyone used Keytruda

by DianaPB - March 02 at 2:52 AM

Hi Edwin,

Thanks for all the info. & posts and they are very helpful.

I am going to read the articls you mentioned.

To my husband, responding to a Med well is the key of survival now. Any trick will help.

Diana

RE: Anyone used Keytruda

by DianaPB - February 28 at 9:49 PM

Hi Edwin,

Also, do you know any tricks to make immunotherapy work  well (or make a patient respond to it well)

Many thanks,

Diana 

RE: Anyone used Keytruda

by DianaPB - February 28 at 4:24 PM

On Feb 28, 2019 3:55 PM djthx wrote:

Hello,

I've been on Nivolumab (Opdivo) - another PD-1 inhibitor, for 4 and 1/2 years now.  I was dx stage 4 gastroesophageal, and currently, there is ned.  I suggest you look at (and continue to research) this article:

https://www.uchicagomedicine.org/forefront/cancer-articles/2 018/january/specific-microbes-in-digestive-tract-can-boost-success-for-cancer-immunotherapy"" target="_blank" rel="nofollow">https://www.uchicagomedicine.org/forefront/cancer-articles/2 target="_blank" rel="nofollow">https://www.uchicagomedicine.org/forefront/cancer-articles/2

All the best,

Edwin

Hello Edwin,

Thanks so much for your response. It is very encoraging that your experinece with Nivolemab is great.

I understand this immuno med is not for GC, and I wonder how did you made the decision to try this one 4.5 years ago. Did your Dr suggested or agreeded with it.

Also, what other things you do help your response to immuno thearppy well, in addition to meditation. (Like exercise, diet, fasting, alkline water, etc..?)

Thanks so mcuh,

Diana 

Anyone used Keytruda

by DianaPB - February 26 at 8:15 PM

Hello

Anyone used Keytrda succesfully. And any tricks to learn to make sure syccesful.

My husband (58) has TCC mets in lungs and he is thinking to take it. 

Your information is greatly appreacited.

On Aug 02, 2018 4:37 PM orchestra47 wrote:

Hello Everyone out there with Stage 4 TCC,

  I have Lynch Syndrome and was diagnosed with bilateral TCC into both renal pelvis, in Jan 2009. After replacement of both ureters with illeal, my right kidney was saved. Flash forward six months latyer and I had mets in liver, lungs, pelvis and left kidney. I was given 2 years to live. I was treated with carboplatin and gemzar for 5 months to help prolong my life. It is now 2018 and my oncologist at MD Anderson said that I am cured. She has no idea why I was spared and said she'd not heard of anyone surviving liver mets with stage 4 bilateral TCC. I used a totally integrated therapy and had (have) an aggressive will to live. I have survived 5 cancers so far, and continue to cycle, work out, and be optimistic about life. By the way, I've just celebrated my 71st birthday! I have a minimal support group and rely on my faith and will to live. I would be happy to correspond with anyone facing this horrid disease, who needs some support and encouragement from one who, has doubly "been there and done that". Life is beautiful. Never give up!My completer story is in 'Hope Never Dies" by Rick Shapiro.

Barb

Hello Barb,

Thanks so much for sharing your story and I am moved by your brave fights against the diseases.

My husband got TCC Stage 4 and we are davastating and try to find oncoligists soon. You mentoined in you have used UCLA doctors and may I know the names of these doctors?

I appeaciate it very much.

Diana

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