Loading...

EDWARD123's Message Board Messages

Loading...
Showing 1 - 10 of 40

Page 1 of 4

RE: Lung cancer

by EDWARD123 - May 17 at 2:33 AM

I  HAVE THE SAME ITEMS AS U AND GONE THRU 3 MONTHS OF RADIATION AND NO HELP AT ALL ,,IN 3 DAY HAVE TO GET AN ULTRASOUND  ,,THEN TALK WITH MY CANCER  TEAM  AND HOPE FOR THE BEST ,,I ALSO HAD THNROAT CANCER 2 YRS AGO  AND THE SURGEON WAS A REAL  [BUTCHER ]  TO ME HE RUINED ME  ,,CANT TALKK RIGHT AT ALL NOW  AND MY LOWER DENTURES DONT WANT TO HOLD AS THE BUTCHER CUT INTO MY GUMS TOO MUCH ...I  GOT THE CANCER FROM [AGENT ORANGE ]  IN VIETNAM ,,,THE WAR ...

On Oct 08, 2012 1:33 PM craviola wrote:

Thank you very much for your help.  One thing:  does the bad taste eventually go away?  Thanks.

i have gone thru the same thing and also a new tongue and its horrible to get around it ,,my toungue is so sentistisitve  that everything i try to eat is like a boiling piece of spice ,,and my tongue sences it right away ,,,i have to drink water to help cool it down  and all  thishas been going on for 2and a half yrs now and will not quit ,,,i still keep on losing weight ,now i weigh at 132,,,,,sometimes i feel like just giving up  and cashing in my ships  ,,and say goodby to all...i am also a disabled vietnam veteran with many other problems ,, such as [[AGENT ORANGE ],,good luck to u ,

there are always long term radiation  side effects ...as i  have had nw going on 2  and a half yrs..u  almsot have tolive with them ...cause they are [INCUREABLE  ]

i have the same problems now  ,,new  toungue ,,hard to swallow ,,speech problems [ especiaslly on telephone  of which i do not answer any more   i let my wife do it now ,,the tongue problem is i can no longer eat eat anythig that is[ hot  or spicecy ]  my right arm is almost useless from radiation ..MY 9  HR.  SURGERY  WAS 2 YRS  AGO ..AND  4  WEEKS OF RADIATION ..UGH..UGH ..

i think we re all in the same boat ,,and its starting to sink ith all of us in it .

YES  I  WAS JUST CHECKED 4  THAT 2 DAYS AGO BYY A  NERVE SPECILIAST ,, THEY CHECK U WITH A SMALL ELECTIAL DOSE FROM 1 SPOT TO THE OTHER  TO SEEHOW IT RESPONDS ON MOST OF YOUR NERVES,,MINE RESPONDED WELL ,,WELL THAT MENT THAT THE RADIATN CAUSED ALL THE PROBLEMS ,,  ,CAUSING IT TO GO DEAD,  BUT STILL SOMEWHAT USEFULL ,,HE TOLD ME THAT THERE WAS NO        CURE FROM IT..JUST HAVE TO LIVE WITH IT ,,,.. ,

On Jul 01, 2018 3:07 PM reissens wrote:

On Mar 06, 2018 4:49 AM Bkwrm wrote:

I have finished 6 weeks of chemo and radiation for tongue and lymph node cancer. It's been a week and I know it takes a while to heal. I was wondering how long before your taste starts to return. I still can't eat, I'm living on ensure and cream of wheat. I can't taste anything.

i am 9 months post treatment, ( 33 rads/7 chemo )  I say I have about 50 % of my taste back,  sweets are a no go which is probably a good thing... chocolate taste like wax!!! but I get by.  I try everything... anything is better than ensure!!!!! When I got my tube out trying food was great. You don't realize what you take for granted until you get through treatment and can't do the things you once did,  but surviving is the most important,  I hope to one day get my taste back, but I am greatful to be here still

TRUST ME IF  U Get them back all the way ,,,u  are really  lucky  .

On Apr 25, 2013 2:56 AM smb22 wrote:

Sorry my friend, I am 10 years out and I cannot swallow or talk very well. I am looking for the same type of info. If I or you find something lets let each other know. I have heard of stem cells from swine being used to regererate damaged tissue but I can't find out any more about how to get into a research program as a voluteer. Anyway I'll do my best to let you know if I find out something of value.

 

IF U  RUN INTO A RESEARCH  PROGRAM ?? LET ME KNOW ,,, I,LL BE RIGHT THERE WITH U ,,,

JOIN  THE  CLUB ,,I AM STILL THAT WAY AFTER MORE THEN 2YRS....

On Jun 01, 2018 2:54 AM KLAllums wrote:

On Sep 27, 2013 11:50 PM lornal wrote:

I had my 9th throat dilation yesterday.  It had been 8 weeks since the prior one, and ALL progress was lost.  In conjuction with the vocal cord/breathing problems popping in the last few weeks, the doctor is recommending a feeding tube - 6 years after treatment.  I didn't expect it, but he concerned with my choking on my meds, dehydration, and lack of nutrituion.

After discussing, we decided to do it - it will be done on Monday.

Honestly, this whole radiation scar tissue causing me problems years later caught me off guard.  Only this past April did I find out the radiation scarring never stops.

THe doc wants to get this in before he can't use the type he likes best.

I'm kind of looking forward to NOT having to stress out 2-3 times a day when it is time for meds!

I went to the doctor yesterday to find out that radiation scarring never stops.  I could not believe it.  I am 8 years out, but never gave up my peg tube.

Is it just me or does it seem this type cancer and treatment seem to have more side effects.  It sucks.

RADIATION CANCER TREATMENT ,, NEVER STOPS  ,,,,O  WOW.I  CAN BELIEVE U NOW  ,,AS ITS BEEN OVER 2 YRS.  FOR ME NOW ,, AND I STILL HAVE MANY PROBLEMS ,, INSCLUDING SPEAKING CLEARLY ...

Showing 1 - 10 of 40

Page 1 of 4

Loading...

About EDWARD123

Throat Cancer

JUST GOT MY NEW TEETH AND ITS PURE HELL TO ME ,,GETTING USE TO THEM AFTER 1 YEAR WITHOUT THEM ..

We care about your feedback. Let us know how we can improve your CancerCompass experience.