Loading...

Ed1001's Recent CancerCompass Activity

  • Ed1001 has commented on a news story

    Having attended the inaugural Cancer Survivorship Symposium in San Francisco in Jan 2016, one of the common themes were that people cured of cancer have a much higher incidence of a major adverse health event 20 years out. This could be a pulmonary issue, stroke, or aging before ones time. There were about 800 attendees, mostly physicians focused on the growing population of long term cancer survivors. I have felt th...

    April 27, 2016 view news story
    • Ed1001 has replied to a post on the message board

      I was on it twice. Once in 2006 for about 6 months. While on it I had a recurrance. In October 2007 I began a chemo cocktail of Avastin every 3 weeks for 8 months and daily Tarceva. The Tarceva dose started at 150 mg. I stopped taking the daily Tarceva medication on 12/31/2013 (over 6 years later) by which time my dose had dropped to .25 mg. I attribute the Avastin/Tarceva combination with stopping my oral cancer rec...

      September 10, 2014 view post
      • Ed1001 has replied to a post on the message board

        Hi Karen, In the interest of full disclosure, I became the volunteer president of the National Foundation of Swallowing Disorders a year ago Seotember. There is much patient-oriented materials on our site at www.SwallowNow.org. This includes ways to find the right swallowing specialist and oral exercises to use that may increase swallowing ability under the guidance of a trained therapist.  On April 30th we're...

        view post
        • Ed1001 has replied to a post on the message board

          Hi Anne, I'm very familiar with VitalStim. Some people feel it was integral to regaining their swallowing ability. Others, highly qualified swallowing specialists, feel it helps in some cases (generally when the muscle and nerve damage is near the skin surface where the electrodes are placed) and has questionable benefits in other situations. This is the opinion of a select group of specialist; not scientific f...

          view post
          • Ed1001 has replied to a post on the message board

            Hi Annie,   My feelings are pretty much the same... would do almost anything but give up my life. No luck with my surgical team. They presented options such as taking my pectoral muscle and using that as a possible repair part. But, they didn't recommend it as my esophagus tissue is damaged from the radiation and the blood flow to replanted tissue may not let the tissue heal. Too much risk.   I ha...

            view post
            • Ed1001 has replied to a post on the message board

              Hi, The Link to the petition is: http://www.swallowingdisorderfoundation.com/support-this-petition-to-nih-increase-swallowing-disorder-dysphagia-research/ If the long link above doesn't work, the short link is: http://bit.ly/Y7GUcL Thank you for your spport. Every signature counts. Regards, Ed

              view post
              • Ed1001 has replied to a post on the message board

                My blog link did not come through properly. It is: www.hncancer.blogspot.com. Thank you again. Ed

                view post
                • Ed1001 has created a new message board discussion

                  Hi All, I’ve been posting here for years on and off. I’m a long term head and neck cancer survivor and have documented my journey in about 200 blog entries atwww.hncancer.blogspot.com. A few months ago I became president of a small all volunteer non-profit 501 (c)(3) foundation whose mission is to advance the treatment of swallowing disorders in our lifetime. We’re doing some very exciting work. A...

                  view discussion
                  • Ed1001 has replied to a post on the message board

                    Hi Kath67, My name is Ed Steger and your post was in response to something I had posted quite some time ago. If interested, Google "Ed Steger Cancer." I have a lot of stuff out on the web... a blog, newspaper quotes, etc. I'll give you a quick synopsis and update.  was diagnosed with stage IV head and Neck cancer in April 2005. In 2005 - 2007, I had 36 IMRT radiation treatments, six surgeries (one a 12 hou...

                    view post
                    • Ed1001 has replied to a post on the message board

                      www.hncancer.blogspot.com

                      view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About Ed1001

                      Patient
                      Head and Neck Cancer

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.