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Ejectoman's Recent CancerCompass Activity

  • Ejectoman has replied to a post on the message board

    I wish I had more information available when I was first diagnosed in Aug/17. With the limited info I was given and read, it appeared that chemo and or radiaTION  were only for stage III/IV cases. Obviously they're not. Had I known more, been clearer in mind, had a partner to discuss this with (I can't begin to describe how lost and alone I was with no partner to share this burden with. In fact, my ex partner a...

    January 18 at 11:05 PM view post
    • Ejectoman has replied to a post on the message board

      You've convinced me to give the pillow a try. I can't sleep on my left side, which was always my preferred side. I'll have reflux within an hour should I try. But I can sleep near flat on my right side which I don't understand. I'm tired of being restricted to a single size hospital bed and would love to be back in my queen bed with a suitable pillow. I'll  report back after I get the pillow and put some miles...

      December 20 at 11:39 PM view post
      • Ejectoman has replied to a post on the message board

        Systemic surgical failure or not, none of us are going to live forever, the end game is the same for all of us, only the timing is different. You'll be in my prayers, espcially with Christmas just a week away. I hope you and your daughters have a wonderful loving time together. 

        December 19 at 10:11 PM view post
        • Ejectoman has replied to a post on the message board

          I'm so sorry to hear what happened to you from chemo but it's hardly fair to others who are considering refusing surgery to claim you are "alive and well."  By your own admission chemo has swollen your brain and heart and it's destroying your joints. There's a very good chance you would not have trigeminal neuralgia if you had the surgery. For those on the fence about surgery I'll post my story. The first 3 mon...

          December 13 at 6:49 PM view post
          • Ejectoman has replied to a post on the message board

            For the first few months after my feeding tube was removed I pushed all the limits of my eating. I ate everything, enormous quantities as well, I ate 5 minutes before bed and many nights forgot to elevate myself. I didn't have a single incident of reflux or aspiration. I was beginning to think everything my Dr. told me was exaggerated. Boy was I wrong. That or something changed radically. When I started to follow t...

            November 01 at 7:32 AM view post
            • Ejectoman has replied to a post on the message board

              I see nobody answered you. There are lots of stories here of stage 4 cancer going into and staying in remission for years after threatmen. Notice the key here is treatment. All the best to you.

              November 01 at 7:08 AM view post
              • Ejectoman has replied to a post on the message board

                What if you only get a year, or less because you skipped the surgery? 

                October 18 at 6:23 PM view post
                • Ejectoman has replied to a post on the message board

                  I don't want to rain on your parade but you can't possibly predict (or know) the quality of your life will go to hell if you have the surgery. The only way to find out, is to have the surgery. It sounds to me, right now, that you went through a very brutal treatment that by your own admission, would make you happy if you get 3 years without recurrence. What if you had the surgery and a rough year afterwards but gai...

                  October 18 at 6:20 PM view post
                  • Ejectoman has replied to a post on the message board

                    I'm so disappointed. I had my esophagectomy in late Jan/2108 and things seemed to go really well for me. My feeding tube fell out after 2 weeks at home (meaning it was in about 4 weeks) and my surgeon said I could keep it out and start eating on the program they had for me. It seemed I could eat most foods as before, I did avoid really spicy and hot foods. I could eat until I felt food in my chest so to speak then e...

                    October 13 at 11:21 AM view post
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