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EllenStone's Message Board Messages

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DIPNECH

by EllenStone - November 29, 2018

Hi, My name is Ellen, I'm 73 years old, and I was diagnosed with DIPNECH in March of 2017.  I had a carcinoid tumor, and tumorlets that were removed along with the middle lobe of my right lung.  I tried sandostatin, and didn't like the side effects. Right now, all I do for the disease is take Advair, and sleep with oxygen.  I live at 7,300 ft., so I need the oxygen at night. I often feel winded, especially walking up stairs, and with exertion.  However, I try to keep active, with walking and yoga. I'd like to hear from others with this disease.

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