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Erob72's Recent CancerCompass Activity

  • Erob72 has replied to a post on the message board

    Orion, very sorry to hear abou your mom. I did a quick google search of RSO and Sacramento and found several good looking dispensaries and products. I live in Washington so the RSO product I use isnt available in CA or I would give you specifics. Keep in mind RSO is generally very potent. I only take it at night and I am knocked out. I found I was uncomfortably high when taking it during waking hours but you can buil...

    March 07 at 10:19 PM view post
    • Erob72 has created a new message board discussion

      I take 200mg both morning and night . I have not had a seizure before or since my diagnosis and treatment. My dr believes some of the tremors I experience on my left side are "seizure activity" and thus why I am prescribed this. My surgery was right sided and I had left sided neglect post surgery(18 mos removed) and continue to have left sided weakness. I can walk and get around but my left hand is basically use...

      February 01 at 8:40 PM view discussion
      • Erob72 has created a new message board discussion

        I take 200mg both morning and night . I have not had a seizure before or since my diagnosis and treatment. My dr believes some of the tremors I experience on my left side are "seizure activity" and thus why I am prescribed this. My surgery was right sided and I had left sided neglect post surgery(18 mos removed) and continue to have left sided weakness. I can walk and get around but my left hand is basically use...

        February 01 at 8:08 PM view discussion
        • Erob72 has replied to a post on the message board

          I am very sorry to hear about your husband. I have a different diagnosis but I believe the initial treatment is the same and if so below is my experience on the Stupp protocol(42 days of Chemo during which there are 30 days with RT).  You asked about dosing - this is based on your husbands weight and I dont recall the formula but you should be able to find it online searching Stupp protocal and temodar(the chem...

          January 24 at 10:17 PM view post
          • Erob72 has created a new message board discussion

            Hello all- I come to this site looking for other GBM surviving patients to share experiences, get advice, and find an outlet that doesn’t add stress to my loved ones. A little about me- I am 46 years old, married for 23 years to my wonderful partner in life and wife who was an oncology nurse before becoming an ARNP. I have three children ages 18,16, & 13. I was diagnosed with GBM4 on 8/14/2016, had surgery 9 da...

            January 09 at 9:35 AM view discussion
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