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Fnixon's Recent CancerCompass Activity

  • Fnixon has replied to a post on the message board

    Welcome to the forum. I am sorry to hear that you had to go through so much but glad that you made it through. My experience was very easy without complications. I had a dilation as a routine procedure on my first post operative scoping. I have not had another in four and a half years. However from what I have read, it is not uncommon to have one or two a year. I wish you all the best in your continuing journey.

    February 19 at 2:49 AM view post
    • Fnixon has replied to a post on the message board

      I had chemo, radiation and surgery in 2014 for EC. I had no complications and live a happy normal life. I also live in Canada. My advice is that if you are fortunate enough to be offered surgery, go for it. My surgery was done at a center that specializes in the procedure. I had an incision in my neck and one in my abdomen, but not through the rib cage.

      January 24 at 7:39 PM view post
      • Fnixon has replied to a post on the message board

        I think the posting you want to read is about 20 posts down from here. It is called "A new pillow that really helped", dated Oct. 23, 2018. I use a six inch wedge pillow and I am good with it.

        December 20 at 7:30 PM view post
        • Fnixon has replied to a post on the message board

          This last one for me wasn't too bad. The thing is there are people who have never had EC and struggle with this problem. So I don't know if in my case it would happened even if I had never had EC and the surgery. All in all I have a pretty normal and happy life.

          December 06 at 6:37 PM view post
          • Fnixon has replied to a post on the message board

            I am four years post surgery. In the first year I had two incidents at night, about two days apart. Last week I had another at night. I was lucky to wake up promptly so there wasn't too much burning. I am hoping that it doesn't happen for another four years or more!

            December 06 at 3:30 PM view post
            • Fnixon has replied to a post on the message board

              There are meal replacement drinks such as Boost and Ensure. I used Ensure for a while before surgery. At the time there were two versions, one with half the calories of the other. the higher calory drink was a bit overwhelming. If you try them, they have programs that you can sign up to, to get discounts on the product.  

              December 06 at 3:26 PM view post
              • Fnixon has replied to a post on the message board

                I was diagnosed with EC just above the junction in 2014. While waiting for the outcome of my first biopsy, I was told that for sure I had Barretts. Barretts is a condition that is thought to be precancerous and will eventually become cancerous. They usually have local procedures to treat Barretts.

                November 08 at 7:10 PM view post
                • Fnixon has replied to a post on the message board

                  I had my surgery in August of 2014 and I live a perfectly normal healthy life. I am now 69 years old. The only changes are that I take one acid pill a day and I sleep on a six inch wedge pillow. Somehow I think there is too much variance between outcomes of the surgery. I would recommend it from my perspective.

                  October 21 at 10:06 PM view post
                  • Fnixon has replied to a post on the message board

                    I am very sorry to hear about your husband's condition. It sounds like he is very ill to me. I don't think it is possible to sleep with eyes open with a normal functioning brain. That is just my opinion but I am not a medical person. I am sure that all our members here would say that our thoughts are with you at this time.

                    October 21 at 9:56 PM view post
                    • Fnixon has replied to a post on the message board

                      I had chemo and radiation before my esophagectomy in 2014. I didn't suffer bad side effects and I now live a normal life, eating anything I want. They told me after surgery that chemo was available but they didn't think there would be a benefit to having it.

                      August 24, 2018 view post
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