FrankeW

FrankeW's Recent CancerCompass Activity

• FrankeW has replied to a post on the message board

  I have been using CBD oil too for the last six months.

  Yesterday at 8:58 PM view post

• FrankeW has replied to a post on the message board

  Me!  (Grade 3) On January 7, 2019 I will be a five year survivor!  Surgery 2-18-2014 at UCSF - Dr. Mitchell Berger, Temodar chemotherapy for one year, no seizures since surgery and no recurrence so far.  Best wishes!

  December 06 at 5:46 PM view post

• FrankeW has replied to a post on the message board

  I know exactly how you feel!  There is always hope.  Take things one day at a time.  

  November 16 at 10:37 PM view post

• FrankeW has replied to a post on the message board

  I have also followed Dodgerblue's posts since my Oligodendroglioma grade three diagnosis.  My 5 year mark will be on January 7th!  So far no recurrence.  It is comforting to read about other people doing well in spite of this terrible condition.  It makes me feel like I am not alone on this strange journey.  Best wishes.

  November 14 at 11:23 PM view post

• FrankeW has replied to a post on the message board

  Dr. Berger at UCSF removed 98+% of my Oligodendroglioma grade 3 brain tumor in 2014.  I was on Temodar for about a year and I am doing great.  No recurrence so far.  Based on my experience, I highly recomend UCSF.

  August 13 at 9:21 PM view post

• FrankeW has replied to a post on the message board

  Discovered my Oligodendroglioma grade 3 on Jan 7, 2014 when I had a seizure in my laundry room.  It was (98%+) removed in Feb 2014 by Dr. Berger at UCSF.  Temodar chemo for almost a year.  No recurrence so far.  The first year for me was extremely difficult.  MRI's every four months is stressful but over time you get used to it.  I still worry just before each MRI but for the most part I...

  July 26 at 4:38 PM view post

• FrankeW has replied to a post on the message board

  That is fantastic news!  I am 4-1/2 years out from having my oligo grade three 98+% resected.  I too have a cyst that is in the tumor cavity.  NO says its fine.  My next MRI is in August.  It is a great feeling when you are given the all-clear!

  July 10 at 12:02 AM view post

• FrankeW has replied to a post on the message board

  Dr. Berger was my neuro surgeon too.  He removed most of my oligodendroglioma grade 3 brain tumor on 2-18-14.  I was on chemotherapy for almost a year.  No seizures since and no recurrence so far.  I have received excellent care at UCSF.

  May 09 at 10:25 PM view post

• FrankeW has replied to a post on the message board

  Oligo Grade 3 here  - 98+% resected in 2014.  I have the favorable deletions also and my neuro oncologist said radiation should be delayed as long as possible so I was on Temodar pill chemotherapy for almost a year.  Just had an MRI on the 17th.  No recurrence.  I feel like I have been steered in the right direction so far.  Best wishes.

  April 26 at 1:24 AM view post

• FrankeW has changed their profile photo

  April 24 at 1:20 AM