Loading...

FrankeW's Recent CancerCompass Activity

  • FrankeW has replied to a post on the message board

    Indeed!

    February 04 at 2:58 PM view post
    • FrankeW has replied to a post on the message board

      With normal kidney function, most of the gadolinium is removed from your body in the urine within 24 hours.

      August 13 at 4:26 AM view post
      • FrankeW has replied to a post on the message board

        My most recent MRI was just before Memorial Day and was once again clear.  Whew!  My neuro oncologist has decided that I can now go every six months.  I am thrilled.  I feel so lucky and more like a normal person now that I have more time between MRI's.  Still on CBD which helps with my anxiety.  Doing great.  I totally agree with you that every day is such a precious gift.  

        July 20 at 7:35 PM view post
        • FrankeW has replied to a post on the message board

          I am a 5 year, 5 months survivor of Oligodendroglioma Grade 3 brain cancer.  Gross total resection.  Was on Temodar for a year.  No recurrence so far.  Keep positive!  Take care, Franke

          April 26 at 2:18 AM view post
          • FrankeW has replied to a post on the message board

            Are you familiar with Charles Trippy?  He is the bass player for the We The Kings band.  He is on you-tube and holds the world record for the most consecutive you tube videos for the past ten years.  He was diagnosed with an Oligodendroglioma grade 3 brain tumor.  He had two surgeries and has been on and off Temodar over the years.  His wife is expecting their first baby in a couple of months...

            April 01, 2019 view post
            • FrankeW has replied to a post on the message board

              I was taking seizure medication (Keppra) for a few months after my surgery until I slowly weaned myself off.  Only then did I start to feel my normal energy come back - even though I was on Temodar for the first year.  I would only be tired at the end of the Temodar week but would bounce back for the remainder of the month.  I am a worrier so the entire first year was a tough one.  I kept thinking...

              January 31, 2019 view post
              • FrankeW has replied to a post on the message board

                As of January 7, 2019 I became a 5 year survivor of Oligodendroglioma grade 3 brain cancer.  After my resection which removed 98+% of my 5 cm tumor I was on Temodar for approximately one year.  No radiation as my neuro oncologist said he wanted to reserve radiation for when my oligo returns.  No recurrence so far.  I have had no seizures since my surgery and I am completely off seizure medication....

                January 31, 2019 view post
                • FrankeW has commented on a news story

                  In 2003 at the age of 43 I had shingles and was diagnosed with an Oligodendroglioma grade 3 brain tumor in 2014 at the age of 53.  I wonder if my tumor started growing in 2003.  

                  January 18, 2019 view news story
                  • FrankeW has replied to a post on the message board

                    Today is my 5 year survivor mark!  January 7, 2014 was the worst day of my life and I never thought I would be here five years later.  Oligodendroglioma grade 3 brain tumor 98+% removed on 2-18-14.  No recurrence so far.  No seizures since my surgery and I'm not taking any medication!  God Bless everyone on this message board.  I am so thankful for all the helpful information over the pa...

                    January 07, 2019 view post
                    • FrankeW has replied to a post on the message board

                      Hello Aussie Marg!  I asked about the frequency of MRI's because our insurance has sky-rocketed since my diagnosis so the fewer MRI's, the better as our deductible is $8,000.  Of course, I always want to do what is best.  Sounds like you've been through quite a bit.  My NO has told me that he wants to reserve radiation treatment until it is absolutely necessary.  Chemo seems to be keeping my ...

                      December 21, 2018 view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About FrankeW

                      Patient, Survivor
                      Brain Cancer
                      After Treatment, Chemotherapy, Clinical Trials and Research, Emotional Support, Insurance, Radiation, Side Effects, Surgery

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.