FrankeW's Recent CancerCompass Activity
-
With normal kidney function, most of the gadolinium is removed from your body in the urine within 24 hours.
August 13 at 4:26 AM
view post
-
My most recent MRI was just before Memorial Day and was once again clear. Whew! My neuro oncologist has decided that I can now go every six months. I am thrilled. I feel so lucky and more like a normal person now that I have more time between MRI's. Still on CBD which helps with my anxiety. Doing great. I totally agree with you that every day is such a precious gift.
July 20 at 7:35 PM
view post
-
I am a 5 year, 5 months survivor of Oligodendroglioma Grade 3 brain cancer. Gross total resection. Was on Temodar for a year. No recurrence so far. Keep positive! Take care, Franke
April 26 at 2:18 AM
view post
-
Are you familiar with Charles Trippy? He is the bass player for the We The Kings band. He is on you-tube and holds the world record for the most consecutive you tube videos for the past ten years. He was diagnosed with an Oligodendroglioma grade 3 brain tumor. He had two surgeries and has been on and off Temodar over the years. His wife is expecting their first baby in a couple of months...
April 01 at 4:42 PM
view post
-
I was taking seizure medication (Keppra) for a few months after my surgery until I slowly weaned myself off. Only then did I start to feel my normal energy come back - even though I was on Temodar for the first year. I would only be tired at the end of the Temodar week but would bounce back for the remainder of the month. I am a worrier so the entire first year was a tough one. I kept thinking...
January 31 at 3:16 PM
view post
-
As of January 7, 2019 I became a 5 year survivor of Oligodendroglioma grade 3 brain cancer. After my resection which removed 98+% of my 5 cm tumor I was on Temodar for approximately one year. No radiation as my neuro oncologist said he wanted to reserve radiation for when my oligo returns. No recurrence so far. I have had no seizures since my surgery and I am completely off seizure medication....
January 31 at 2:55 AM
view post
-
In 2003 at the age of 43 I had shingles and was diagnosed with an Oligodendroglioma grade 3 brain tumor in 2014 at the age of 53. I wonder if my tumor started growing in 2003.
January 18 at 1:15 AM
view news story
-
Today is my 5 year survivor mark! January 7, 2014 was the worst day of my life and I never thought I would be here five years later. Oligodendroglioma grade 3 brain tumor 98+% removed on 2-18-14. No recurrence so far. No seizures since my surgery and I'm not taking any medication! God Bless everyone on this message board. I am so thankful for all the helpful information over the pa...
January 07, 2019
view post
-
Hello Aussie Marg! I asked about the frequency of MRI's because our insurance has sky-rocketed since my diagnosis so the fewer MRI's, the better as our deductible is $8,000. Of course, I always want to do what is best. Sounds like you've been through quite a bit. My NO has told me that he wants to reserve radiation treatment until it is absolutely necessary. Chemo seems to be keeping my ...
December 21, 2018
view post
-
I am almost at the 5 year mark with my Oligodendroglioma Grade 3 brain cancer with no recurrence. My surgery was February 18, 2014 which removed 98+% of the tumor on my motor strip. Was on Temodar for one year. No radiation. I haven't had a seizure since surgery. I am not on any medication. I take CBD oil. I have been getting my MRI every 4 months. Just had one yesterda...
December 16, 2018
view discussion
Load more activity
Loading more activity 
About FrankeW
Patient, Survivor
Brain Cancer
After Treatment, Chemotherapy, Clinical Trials and Research, Emotional Support, Insurance, Radiation, Side Effects, Surgery