Loading...

Henrietta's Message Board Messages

Loading...
Showing 1 - 10 of 13

Page 1 of 2

Using the address you gave, I was unable to access the bladder cancer cafe site......Henrietta
Thank you for the address....I will visit and do what is necessary. My surgery was in 10/04 and subsequent BCG/Interferon A chemo has been effective. Next cysto exam 10/11....Henrietta
Your note suggested a bladder cancer support group.....but there was no email or web address. Can this be available to us patients? In the 11 months since my diagnosis with bl cr Stage 2, following surgery, and continuing chemo , (about to begin the 4th couse of BCG/Interferon A), I've been in a cancer support group but have not ever talked with another bladder cancer patient, except thru this message site.
Rose, as I recall, I saw the reference to it on this site, and looked for it online....maybe at half.com or amazon or b&n....? The 1994 edition is what I have and it was $15.00, probably less at half.com. Happy hunting......Henrietta
Rose. My newest book is one I ordered from this site...."Beating Cancer with Nutrition" which is considered to be a 'bible' for RD/LD's practicing in area hospitals and nursing homes in the midwest. There are many things I'd not known that Dr. Patrick Quillin included and I've utilized some of his suggestions. Others are frowned on by other docs, especially endocrinologists. I'll visit your suggested site also. Keep learning and questioning. Henrietta......
Nanjulia.....I too was a smokier, female, started the summer before my senior year in high school and quit the night before my bladder cancer tumor removal last October, at age 67. My treatment for Stage II Ta, is also BCG/ Interferon A....3 weekly sessions, a cystoscopic exam and the 3 month cycle repeats. So far, I've only been told that 2 more cycles are planned, but to expect the cysto exams every 3 months. Like you, I am grateful to be at a teaching hospital with exemplary docs in my kind of cancer. M D Anderson is one of the premier sites for treatment also. I've gained weight (12#) after quitting, and another 15# during the first 6 weeks of BCG+. Can't seem to lose it.....but....I can LIVE with it!! Stay strong. Henrietta
Rose, Thanks for your response.....I know the repeating treatments at my teaching hospital are considered to be "maintenance" chemo. Research shows it to be effective. One of the things I've learned in this process is to have faith in your doc. I've requested dietetic consults, and as a home economist, I was already doing many of the recommeded changes, but added a few. Your nutrition site is interesting, but very contrary to my training. Good luck, both to your husband and your friend. Henrietta
Jim...my hopes for a beneficial test for you on 3/9 were in my head when I read your last message, and that's also when my geriatric (10/99) Gateway began having "non-benign-behaviors" and I'm still in process, almost daily, with a 'retired' techie, who just fixes 'nice' peoples computers for pin-money. What with a new monitor, more USB ports (for the camera and Palm), more memory, a 2nd hard drive in the near future, the addition of Windows XP...I'm very delayed in getting on-line again and back to you. Hopefully the catheritization went well and the results made it possible to give you more comfort and function. Has your chemo resumed? Not taxotere I hope! My 3/8 cystoscopic exam showed no cancer....which the oncologist let me enjoy for about a minute and a half before he said, they've found that three 3 month cycles of 'preventative maintenence' chemo (with a cysto exam at the end of each) shows great benefit in reduction of recurrance. So....as you said so well....it's a time game, and we will try to be well as long as possible. My new series begins 4/11....and so it goes......hoping you are well....hjtk
Your message apparently stayed in my mind for a month, altho I had no information to share then, I did find a reference this morning, while browsing at www.wellmark.com, under myhealth@wellmark, searching bladder cancer, an article from 4/30/04 from Healthday News , connecting a higher incidence of bladder cancer in Scottish terriers and relating it to use of lawn chemicals. I did not read the whole article, was under a time constraint, but was glad to find something that you may want to follow up on.......good luck....hjtk (message: want to discuss/same diagnosis)
One of the developments after my chemo began was a new heel spur, so I've not been doing the walking that I had done ( 2-4 miles a day) prior to the diagnosis. (I had two knee replacements in 8/01.) During the surgery they put a stint in from the kidney to the bladder, because of the placement of the 'stem' of my tumor. Due to that, they didn't want me to 'walk' so much after the surgery.....and that's why I think I have low back pain now. I'm using a heating pad on low to get to sleep. No pains in thighs. My friend said the surgeon came out to say the surgery went well and I was in recovery about 3 hours after I went in. Since the tumor was golf-ball sized and being 'sliced' thin enough to be 'washed out' through the urethra, it took awhile. Slept most of that day and stayed overnight because my bp is ALWAYS low....116/60 +/- but they wanted to monitor it . No pain pills necessary, except for a couple to get out of the hospital and into the car for the 2 hour drive home. The abdominal scan was one of the tests the first urologist wanted when I went to them with the symptom of bright blood in the toilet bowl. You drink lots of water and it goes away. It had happened a year ago and the local ER docs said it was probably hemmorhagic cystitis, but when it recurred a year later it was cancer. The urologist showed me the 'superficial' tumor ( the slices' from the abdominal scan) on the laptop in the examining room before she called in the Chief of Urololgic Oncology,(who would be my surgeon) for the cystoscopy. Ours is a highly regarded state teaching hospital also. My faith is good in their caliber of care and treatment. But I'm adding the nutrition piece because I am trained as a home economist and know the benefits of diet in recovery. When is your surgery scheduled? Keep me posted. hjtk
Showing 1 - 10 of 13

Page 1 of 2

Loading...

About Henrietta

Survivor
Bladder Cancer

We care about your feedback. Let us know how we can improve your CancerCompass experience.