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JBUFKIN's Recent CancerCompass Activity

  • JBUFKIN has created a new message board discussion

    My husband has been in the hospital a week with a fever, chills, elevated liver enzymes, low lipase, and his CA19-9 is 1400... through the roof!  His oncologist refuses to admit his cancer is back! Now they want to ship him to Vanderbilt.... I think it's too little too late.  Has anyone had this complication after a Whipple and what was done to releive it?  Also, does this mean the cancer is back? ...

    October 10, 2014 view discussion
    • JBUFKIN has replied to a post on the message board

      Hussy, I really thought I was going to lose him for a minute, but he feels a lot better after getting that infection under control.  I have really learned to enjoy every minute of every day God blesses me by having him.  I have also realized nothing can ever take away the time we have had and will have together.... he will live forever in my heart and mind, just like I will live forever in his, and that is ...

      September 19, 2014 view post
      • JBUFKIN has replied to a post on the message board

        Thanks Cathy, but he is very picky, he only likes the Kellogg's shakes, says Ensure tastes like chalk, lol.  But I found a protein powder at the supplement and vitamin store that I sneak into a fruit smoothie once in awhile for him ;)

        September 19, 2014 view post
        • JBUFKIN has replied to a post on the message board

          Sorry the Claritin didn't help, but glad to hear his WBC is up.

          September 14, 2014 view post
          • JBUFKIN has created a new message board discussion

            Update on my husband, Mark, is out of the hospital after septicemia.  He is stable, but has a lot of pain when eating.  He said his back pain is all but gone!  They think his blood infection started in his prostate.  His oncologist did his CT scan while he was in the hospital, said it was clear! He warned of the statistical probability, but there are people on these boards who have lived 3 or 4 ye...

            September 13, 2014 view discussion
            • JBUFKIN has replied to a post on the message board

              Mark got a Neupogen shot after each cycle.  The day after, at least 24 hours.  He said it gave him a lot of bone pain, but it boosted his white count right back up to near normal by the start of his next cycle.  He has been off chemo for a month and developed an infection in his blood, but his white count was normal with it... so, the longer term effect seems to be the chemo is hanging around long afte...

              September 07, 2014 view post
              • JBUFKIN has replied to a post on the message board

                Check out the national tumor registry through John's Hopkins.  They have a familial large scale genetic study that has identified several familial genetically linked pancreatic cancer cases...  Most of these are due to silenced tumor suppressor genes or activation of oncogenes... I have just gotten in touch with them because I have a husband with pancreatic cancer and twin boys that will hopefully be of ben...

                August 17, 2014 view post
                • JBUFKIN has replied to a post on the message board

                  I'm very sorry about your Dad.  My husband has had the same done.  Radiation 5 times a week for 6 weeks and 4 cycles of chemotherapy with gemcytobine of once a week for 3 weeks, one week off in between. The dose was decreased by a third after the first two weeks of the first round because his white count dropped to critically low.  So, after each cycle, he was given a shot of Nupogen to stimulate his b...

                  August 08, 2014 view post
                  • JBUFKIN has replied to a post on the message board

                    You can try the cancercare.com list of foundations/ charitable organizations that help cancer patients with prescription meds.

                    August 07, 2014 view post
                    • JBUFKIN has replied to a post on the message board

                      These are great questions... If you get any answers please let me know.  I do believe it's taken on an individual basis though.  

                      August 06, 2014 view post
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                      About JBUFKIN

                      Caregiver
                      Pancreatic Cancer
                      After Treatment, Alternative Treatments, Biotherapy, Cancer Diagnosis, Cancer Nutrition, Cancer Prevention, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Diagnostic Imaging, Diet, Emotional Support, Genetics, Insurance, Lifestyle, Recipes, Side Effects, Spiritual Support, Supplements, Surgery

                      I am a caregiver for my 42 yr old husband with the dx of pancreatic cancer. He was between stage IIB and III when he had a whipple surgery 12-04-2013. He received adjuvant radiation and Xeloda and is currently on week 10 of Gemzar chemotherapy. We have not, as of yet, had a post treatment scan, but were told he has a 90% chance of recurrance.

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