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JenniferAL's Recent CancerCompass Activity

  • JenniferAL has replied to a post on the message board

    It's September 2018. Ten years from February to August my beautiful Mom fought this.  Best advice after repeatedly studying this is either a full Whipple plus palliative chemo or simply just taking palliative chemo with low dose, ginger for nausea and taking as many vacations add you can. All other treatments are just studies and will decrease life quality vs quantity.  No amount of herbs, fixes, extensiv...

    September 23, 2018 view post
    • JenniferAL has replied to a post on the message board

      Irony has it that my Mom's birthday was on July 17th as I just read. Guess she was looking over me to respond tonight. Her words for me was to find some way to cure or slow her disease down so others didn't have to go with what she was going through. Yes, July 17th of 1945 was her date of birth. 

      September 23, 2018 view post
      • JenniferAL has replied to a post on the message board

        Only if treated at John Hopkins do you know the genetics. Many centers, hospitals or even schools do not actually test thoroughly for this. J. Hopkins will at first dx. Others seem to speculate in order to match their protocols for their institution. I have found this unfortunately to be said worldwide as I've lost my Mother to this and have done many researches to find the bottom core of this disease. 

        September 23, 2018 view post
        • JenniferAL has replied to a post on the message board

          My Mom was a case study for this in Feb to Aug 2008. We didn't know nor consent to this either. No, it failed and failed miserably. Once they told my Father and I of this they began immediately trying to work on another remediation. She was a first of her own kind in nursing in her field years ago, first in the state actually. Turned she was a first in her battle for the same state. We were let down. Golden treatment...

          September 23, 2018 view post
          • JenniferAL has replied to a post on the message board

            My Mom was a case study for this in Feb to Aug 2008. We didn't know nor consent to this either. No, it failed and failed miserably. Once they told my Father and I of this they began immediately trying to work on another remediation. She was a first of her own kind in nursing in her field years ago, first in the state actually. Turned she was a first in her battle for the same state. We were let down. Golden treatment...

            September 23, 2018 view post
            • JenniferAL has replied to a post on the message board

              Dilaudid will get the pain down some but the best ones for my mom were long term, med term and short acting forms of morphine.  Unfortunately she was given Lortabs and Oxycontin which were damaging to the invaded liver. Oxy made her terribly sick due to the liver not being able to process the drug like a normal liver would. UAB almost kicked her out of the hospital for refusing this drug and she was a former nu...

              November 27, 2017 view post
              • JenniferAL has replied to a post on the message board

                My Mother was dx in Feb, 2008. Her main complaint was back pain prior to diagnosis to the day she passed.  We found out that the tumor was placing pressure on her spine and radiation therapy did shrink the tumor some this helping with her pain. Once radiation was complete the severe pain returned. It's more than likely the tumor pressing on a nerve and causing this pain. Mom liked her ice packs and back rubs to...

                November 27, 2017 view post
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