Loading...

JohnnyP's Recent CancerCompass Activity

  • JohnnyP has replied to a post on the message board

    Dr. Cantley says the tumors are still there, visible on CT scan,  but no longer visible on PET, so their glucose uptake has been drastically cut.  He says the patient survived another 18 months.  He did not comment on her diet.

    Monday at 12:53 PM view post
    • JohnnyP has replied to a post on the message board

      I followed up on a lead dropped by Dr. D'Agastino.  He mentioned Dr. Lewis Cantley, so I did a search of him at the same conference and found his talk on PI3K inhibitors: https://www.youtube.com/watch?v=S395qX6G6HM WOW WOW WOW. See PET scan at 16:25 and graph at 36:51.  Note that patient must not be on insulin and must be on a ketogenic diet to keep insulin low.

      Monday at 12:50 PM view post
      • JohnnyP has replied to a post on the message board

        critic: Darn, looks like I missed out on the videos.  $30 to view now.  It's for a good cause, so I will probably spring for it later this week.

        Monday at 8:50 AM view post
        • JohnnyP has replied to a post on the message board

          J: I was watching another D'Agostino video yesterday.  It's pretty long, and he runs out  of time at the end when he gets to the cancer portion of his talk, but he does mention keto and HBOT, IV C, 3BP, 2DG, DCA, etc.  I have it cued up: https://www.youtube.com/watch?v=9AQ5ut5toy4&t=52m13s He says vitamin C doesn't work by itself, "but it is promoted".  He does on to say it works with other...

          Monday at 1:25 AM view post
          • JohnnyP has replied to a post on the message board

            J: Shirley went for a blood draw just before her first HBOT session.  Her WBC count is still low at 3.0, but better than it has been at 2.7.  Her cancer antigen CA15-3 continues to climb, now at 71, an increase of 5 points in two weeks, compared to a 12 point jump in the previous two week period. Cancer is relentless, growing 24 hours a day, while the HBOT is just three hours per week.  We'll get ano...

            May 10 at 2:36 AM view post
            • JohnnyP has replied to a post on the message board

              J: Thank you for your thoughtful (as always) reply. Shirley had her first HBOT on Monday.  One hour at 3.0 (!) atmospheres.  They let me go in the chamber with her.  She gets 100% oxygen from a face mask while I breath normal air. We are scheduled for three times a week, twenty sessions to start with.  We'll keep an eye on her blood work to see if it helps her white blood count and CA15-3 cance...

              May 08 at 5:10 PM view post
              • JohnnyP has replied to a post on the message board

                J: I don't usually watch the "chisbeatcancer" channel, but I clicked on it the other day to see what his guest Jane McClelland was about: https://www.youtube.com/watch?v=qReudtklq9Y It turns out she is really smart and has REALLY done her homework, searching for old drugs to repurpose for cancer, along with supplements.  She has an English accent and is a little hard to understand, but worth it. I have her s...

                May 04 at 6:06 PM view post
                • JohnnyP has replied to a post on the message board

                  There was a story on a news site where I spend a lot of time, about a guy that cured his lung cancer using an over the counter worm medicine for dogs.  The active ingredient is fenbendazole.  It's on Free Republic: https://www.freerepublic.com/focus/f-chat/3745013/posts I see that Daniel was onto this last year.  I follwed his links and found a story about a college professor in San Diego that used r...

                  April 27 at 8:38 PM view post
                  • JohnnyP has replied to a post on the message board

                    Shirley went in for her monthly follow up visit.  Actuall, it's only been two weeks, because they wanted blood work prior to taking Verzenio. Bad news.  Her CA15-3 jumped 12 points in two weeks, now at 66.7, high normal is 25. Still, she's feeling and looking very good. We saw a new guy, a physician's asistant.  He asked why Shirley wasn't taking the Verzenio provided, she said it was too costly, ma...

                    April 27 at 7:28 PM view post
                    • JohnnyP has replied to a post on the message board

                      Oh, forgot to say, I do plan on spending savings to do HBOT, but I don't want to start until I read up on high dose IV vitamin C.  I think it would be better to combine them than just do HBOT alone. I was just looking at the drug they want her to start taking.  It's "Verzenio".  They gave us a one month supply, but Shirley is afraid to take it, after reading about all the side effects, expecially cons...

                      April 25 at 2:22 PM view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About JohnnyP

                      JohnnyP has not shared any information about themselves. Send them a message to tell them you'd like to find out more about them or add them as a friend.

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.