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Josephine06's Recent CancerCompass Activity

  • Josephine06 has created a new message board discussion

    I am currently under treatment with Pegasys for my ET/PV condition. I am interested to see how any of you going through the same experience are doing, especially those who've been under treatment for some time now. I had eight injections so far (45 mg). My blood counts are better, but I do not see any changes in my symptoms. I understand everyone is different, I was from the very beginning highly symptomatic. I am ta...

    September 18, 2018 view discussion
    • Josephine06 has replied to a post on the message board

      Hi Gusss, I know yours is an old post so ii hope you are well. Yes, there is something your docs can do for you, and that's put you on Jakafi ( it is approved for PV), and you'll immediately feel relief. Take care

      August 30, 2016 view post
      • Lindajoanna

        Lindajoanna Hi Josephine did you have any side effects from Jakafi? I just started it and am having side effects. 10 mg twice a day

        October 29, 2016
    • Josephine06 has replied to a post on the message board

      Hi Cinderella89, They don't agree at all in medical literature on life expectancy for ET patients. The numbers you mention are for people that are usually over 60 and with other conditions (diabetes, heart disease, high blood pressure) . Life expectancy depends on so many things! I truly believe that if your disease doesn't progress into leukemia or fibrosis, you stand a good chance to a normal life in terms of numb...

      August 28, 2016 view post
      • Josephine06 has replied to a post on the message board

        Dalt, I also need your help. I am new here, new to the diagnostic, new to the feeling of frustration of not being able to do much. Where do I send my email? I was diagnosed in Milwaukee, but currently moving to Fort Meyers. Thinking of using Cancer Center of America (Atlanta) as they seem to have a very comprehensive approach.

        August 14, 2016 view post
        • Josephine06 has replied to a post on the message board

          Oneofathousands , you're one in a billion. You understand human nature so well.

          August 14, 2016 view post
          • Josephine06 has created a new message board discussion

            Hi, I'm new here and trying to contact people with a Myelofibrosis diagnostic. I'm interested in everything in connection to the subject, but very much in vitamins, minerals, natural approaches. It's my understanding that some of you are extremely knowledgeable in this respect. Please help me, I am trying to make sense of what is happening to me. Thursday was my hammer day, so to speak, my labs were abnormal, and a f...

            August 14, 2016 view discussion
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            About Josephine06

            Patient
            Leukemia

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