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Karenb's Recent CancerCompass Activity

  • Karenb has replied to a post on the message board

    Dear Melissa I continue to be shocked that people accept a stage IV diagnosis as a death sentence. I was diagnosed stage IV at age 46 in 2006. My sons were 16 and 17 years old. I have a husband I adore. Obviously I have a lot to live for AND more importantly I have a strong will to live. Over the course of 2006-2009 I had 4 surgeries and three years of chemotherapy. I achieved no evidence of disease (NED) ...

    October 30, 2016 view post
    • Karenb has replied to a post on the message board

      Hi Carolyn I had my colon resection 3/2006 followed by FOLFOX for 12 sessions. It did not shrink my liver mets. We repeated FOLFOX for 12 more sessions because oncologist said we had not given FOLFOX a chance to work. Then went on to FOLFURI and it failed too. (12 more) and then FOLFIRI plus Avastin. Vomiting, lost 30 pounds. Went to seek another opinion out of state. First thing they asked was why didn't we ...

      July 11, 2015 view post
      • Karenb has replied to a post on the message board

        Dear GLemond: I was diagnosed At age 46 with stage IV colon cancer that had metastasized to my liver. I have had 4 abdominal surgeries and 3 years of chemotherapy. Today (9 years later) I have no evidence of disease (NED) You expressed Being terrified. Fear can be your friend, just try not to be paralyzed by it. Fear can be a good motivator. What helped me the most is talking to fellow patients and developing m...

        July 03, 2015 view post
        • Karenb has replied to a post on the message board

          It is important to discuss the KRAS implications with your oncologist as it does effect your treatment plan. Following is a link to a good article from discovery medicine. If you are unable to open the link or if you want a copy of the complete article (versus the abstract) ask your oncologist to print a copy for you. http://www.discoverymedicine.com/Barbara-L-Parsons/2013/04/26/personalized-cancer-treatment-an...

          October 23, 2014 view post
          • Karenb has replied to a post on the message board

            Dear Hardunger, I am a stage iv colon cancer survivor. I have learned to be my own advocate, seek second, third and sometimes fourth opinions, and do my own research - before finalizing my treatment plan. I believe that is the reason I am still alive and now NED (no evidence of disease) despite being told in 2008 that I had 6 months to live. . In Pennsylvania there are 2 NCI designated Centers Abramson Cance...

            September 14, 2014 view post
            • Karenb has replied to a post on the message board

              Hi Althea, Faith and trust are good things. So is loyalty and stubborness. All of these traits are why I am still alive. But these traits should work for you not against you. A second opinion is just gaining additional knowledge about our disease. It is what we call being patient active. Doctors today expect us to be patient active.  The knowledge I gained through additional opinions empowered me to make the ...

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              • Karenb has replied to a post on the message board

                Althea, I have Lynch Syndrome, a hereditary form of cancer caused by mismatched repair genes. I developed colon cancer. My brother, also Lynch Syndrome developed bile duct cancer and he has had the whipple procedure. I can't stress enough the value of second, third and even fourth opinions. This is what saved my life. My cancer had spread to my liver. I had two liver resections. One at Jewish Hospital Louisville by...

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                • Karenb has commented on a news story

                  People with Lynch Syndrome have a defective gene that causes colon cancer. I am part of the third generation of my family with Lynch Syndrome Colon Cancer. No lifestyle or environment factors can change the fact that since I have this defective gene, I have an 80% chance of getting colon cancer. I was diagnosed at age 46 with stage IV colon cancer. Unfortunately I did not find out until after I had cancer, that I had...

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                  About Karenb

                  Patient
                  Colon Cancer

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