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KauaiNancy's Recent CancerCompass Activity

  • KauaiNancy has replied to a post on the message board

    I, too, would be interested in forming a group or registration of recipients of infant thymus radiation. I was radiated in 1944 in Vancouver, BC, Canada. I've had 4 different primary cancers since then. While I'll always be grateful to all the docs who've kept me alive, after reading some of these posts I realize how devastating the medical costs must be for those without insurance, or whose ins. doesn't cover some ...

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    • KauaiNancy has replied to a post on the message board

      Hi again, I had missed this when I posted my message earlier today. I don't want to complicate things by having two sites so please let me know if or how we could work together or if I'm overstepping on your project. My intent is to set up a site where we can post good, empirically scientific reports on the study as our main goal. I was given a print-out from Stanford that I had seen earlier from PubMed. Wonder how ...

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      • KauaiNancy has replied to a post on the message board

        Does anyone know of a Registry online for this? If not, it would be very interesting to see how many of us there currently are who are aware of having our thymus radiated as infants. I'm not sure how to go about creating an official Registry but in the interim, let me know if you would be comfortable with joining an online email list where we could post informative info. I just met another doctor who was aware ...

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        • KauaiNancy has replied to a post on the message board

          Hi Joyce, I would be very supportive of joining a yahoo group to gather information on good resources on those of us who were radiated on our thymus as infants. I would love to see the results of the Rochester study. I have read two medical papers through PubMed and was given another during a consult at Stanford for another matter, my heart. So far, you're the only person I've read about who was ...

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