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Kelly1388's Recent CancerCompass Activity

  • Kelly1388 has replied to a post on the message board

    Hi Rani, That is interesting. I don't know the answer to your question but I was diagnosed stage 4 a year ago with bone mets. I started Tarceva which gave me a very severe rash ( most common side effect). My oncologist put me on twice daily 100mg doxycycline to manage the rash. My bone mets healed, I continued the doxycycline for about 6 months. I don't know if it contributed to the healing of the bone along side th...

    November 28, 2015 view post
    • Kelly1388 has replied to a post on the message board

      Hi Iginther, I'm sorry you had to find this site. I don't know anything about hyperthermia but if you post a new discussion, maybe someone can answer your question. Wish you all the best. Kelly

      August 28, 2015 view post
      • Kelly1388 has replied to a post on the message board

        I'll go first, Diagnosed 10 months ago stage 4 NSCLC with mets to brain, hip and sacrum. Tested positive for EGFR. I've been on Tarceva for 8 months. I feel better than ever. Kelly,

        August 21, 2015 view post
        • Kelly1388 has created a new message board discussion

          Hi compass friends, It's time for a roll call. If you have stage 4 lung cancer, or if you are a caregiver to someone with stage 4 LC, please post how many years has it been since diagnosis, mets or no mets, your treatment plan and how do you feel right now. Let's give some newcomers to this site some hope. Kelly

          August 21, 2015 view discussion
          • Kelly1388 has replied to a post on the message board

            Dear Steve, I am so sorry you had to find this site. I was diagnosed 9 months ago with stage 4 NSCLC with mets to hip, sacrum and brain. Inoperable. I am 40. Have your doctor mentioned genetic testing? If you test positive for some of the common mutations, your treatment will be an oral targeted chemotherapy. Please don't let anyone tell you "you have an expiration date". There are so many people that are living wit...

            August 21, 2015 view post
            • Kelly1388 has replied to a post on the message board

              Hi MKidd, That is great for your father. I wish him many more years of being cancer free. I've been on tarceva for 7 months now. I feel good. My hip pain is completely gone and my cancer is stable. I go in for a CT scan every 6 weeks and I'm getting one this Friday. Having a little bit of scanxiety. I hope to have a successful run on this wonder drug for a very long time. I pray that I do. Kelly

              July 27, 2015 view post
              • Kelly1388 has replied to a post on the message board

                Hi Russell, I am so sorry to hear what you are going through. I found that only reading positive stories help me stay more hopeful and optimistic. My oncologist believes it's a great time to be optimistic about cancer treatments. Let's enjoy every day we are given. I have heard from many people who thought they only had months to live and years later they feel better than ever. I will keep you in my prayers. Hugs:)...

                May 12, 2015 view post
                • Kelly1388 has replied to a post on the message board

                  Hi katycv, I was at Sloan yesterday. I had an appointment with my oncologist and later an appointment with the dermatologist, Dr. Lacouture . Do you see him? I just wanted to let you know that he didn't think my hair was falling but it's definitely thinning. He wrote a prescription for minoxidil, which is basically Rogain. Have you tried it? He said to use ( if I want) the 5%for women. I might try it. He is going to...

                  April 03, 2015 view post
                  • Kelly1388 has replied to a post on the message board

                    Hi, I started with 1200mg for the high dose, had a very sever rash so my oncologist gave me a week break and then lowered it to 900. I'm curiouse, we might both be in the same trial then. I go to Memorial Sloan Kettering in NY, what about you? It's interesting you mentioned hair. Yes, about a month ago, I started loosing a lot. I had long hair so I cut it short(er). I also see a dermatologist at my cancer center an...

                    March 28, 2015 view post
                    • Kelly1388 has replied to a post on the message board

                      Thank you katycv, You mentioned you're on the high/low dose. I think you are the first person I found who is on this treatment plan. Are you on pulsed tarceva? I take 900mg on high days and 50mg on low days.

                      March 26, 2015 view post
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