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Kulbreez85's Recent CancerCompass Activity

  • Kulbreez85 has created a new message board discussion

    Just wanted to let every one know my experience. Three years ago I developed severe neuropathy - looked like my feet were burned after one dose of taxotere. Could not even walk for months! On the advise of another patient i tried acupuncture (electric pulse) and it improved my steps from 300 to 1,500 daily. Last summer i followed the doterra fit diet and took vitality pack - veggie omega not fish oil because Dr sai...

    July 21, 2017 view discussion
    • Kulbreez85 has replied to a post on the message board

      Hi! Dr. Brown was my doctor at MD Anderson. I was on an Avastin for over a year before a hernia complication that caused some difficulties. I had some side effects the first couple of months but then they subsided and i was able to live a realtivey normal life. And, i loved the no hair loss deal. She has been working ith GCT patients a long time. I have known her since 1998 (Age 31) when she was on the team that firs...

      July 21, 2017 view post
      • Kulbreez85 has replied to a post on the message board

        I was already not working because i have neen dealing with GCT a long tim since I was 31. I have heard of people doing it with a faster push as out patient but my doctor did not reommend it. Treatment was every 3 weeks. I had a 5 day hospital stay(24 hour infusion) followed by a about a week of nausea and tiredness. Then one week where i felt good only to start process all over. If your work has family medical leave...

        July 19, 2017 view post
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          July 19, 2017
          • Kulbreez85 has replied to a post on the message board

            You can only do 4 doses in a lifetime otherwise risk of side effects increase by 50%z i did BEP 2 yrs ago. Tumors shrank but did not completely go away but i have several (7 they were measuring) that were up to 7 inches in size. So depending on how big yours are. My doctor did the slow drip to minimize side effects so it was 24 hrs a day for 5 days. My hair did start fall out after three weeks. I felt nauseated for ...

            July 19, 2017 view post
            • Kulbreez85 has created a new message board discussion

              Hi, I wanted share my story and experience. My whole life I never had a period that was not medically induced. I had early puberty, breast by 3rd grade, shaving legs by 5th grade and I was a little overweight. Those were my symptoms. Doctors always blamed it on my weight. I went years telling doctors there was something wrong but to no avail. Finally, I was diagnosed with Granulosa Cell Tumor in 1998 at the age...

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              • Kulbreez85 has replied to a post on the message board

                That is great news! Stay proactive! And, look at hollistic healings. I have been hearing a lot about IV Vitamin C. My cousin's daughter went on it because of Polycystic syndrome after a friend of her mother's used if for cancer treatment. The friend had small tumor 2 cm, Mine are 17 cm, so I am considering using it as a secondary treatment after BEP (they can only do 3-4 cycles from what I am told) if the other drug ...

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                • Kulbreez85 has replied to a post on the message board

                  I am starting on March 26th. I have found several blogs from testicular cancer patients, but not a whole lot from ovarian. just a few. 

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                  • Kulbreez85 has replied to a post on the message board

                    Hi, I wanted to respond to tell you my story and experience. My whole life I never had a period that was not medically induced. I had early puberty, breast by 3rd grade, shaving legs by 5th grade and I was a little overweight. Those were my symptoms. Doctors always blamed it on my weight. I went years telling doctors there was something wrong but to no avail. Finally, I was diagnosed in 1998 at the age of 32. I...

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                    • Kulbreez85 has changed their profile photo
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                      About Kulbreez85

                      Patient
                      Ovarian Cancer

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