Loading...

L1049A's Recent CancerCompass Activity

  • L1049A has created a new message board discussion

    I am 56 years old. Diagnosed 5 years ago wth Advanced Metastatic PC. Gleason - 9, Tumor - T4 which spread to my bladder and misc: seminal vesicles, uretor, etc. Was doing very well until 12/2017 when my PSA rose to where it began when diagnosed - from 0.23 to 4.3. Determined through PET scan that it spread to 5 lymph nodes near aorta and spine. Have been on Lupron injections every three months since diagnosis. Have ...

    July 02, 2018 view discussion
    • L1049A has replied to a post on the message board

      Sorry to hear about your diagnosis. I, too, live in Miami and I see a highly reputable Urolgist at UM Sylvester. I have been battling this for 5 years now (51 y.o. when diagnosed). My Gleason was/is 9 and my tumor was T4. Too big and advanced to remove. So I've been on Lupron (every 3 months) since early 2014. I have done two rounds of radiation. Now just completed #4 of 6 rounds of chemo (Docetaxel). The chemo makes...

      July 01, 2018 view post
      Loading...
      Load more activity
      Loading more activity

      About L1049A

      Patient
      Prostate Cancer
      Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Emotional Support, Lifestyle, Side Effects

      I am 56 years old. Diagnosed 5 years ago wth Advanced Metastatic PC. Gleason - 9, Tumor - T4 which spread to my bladder and misc: seminal vesicles, uretor, etc.
      Was doing very well until 12/2017 when my PSA rose to where it began when diagnosed - from 0.23 to 4.3. Determined through PET scan that it spread to 5 lymph nodes near aorta and spine. Have been on Lupron injections every three months since diagnosis. Have gone through two rounds of radiation (3 years ago, 40 sessions, this year, 25 sessions). Currently undergong chemo (Docetaxel), just completed 4th of 6 cycles. I have maintained a positive outlook and very much intend to win this battle. I am interested in communicating with other patients with similar disease as well as anyone else who may be able to help me with the most common and obvious side effects of this disease and its treatments. I am eager to pursue as normal a life as possible, ie: dating women again - I was in the process of divorcing at the time of diagnosis and have only just gone out on a date this week. So as a starting point, would love to know if there are support groups, other patients or caregivers that can give advice in this area. It's making me a nervous wreck. This is just the issue of the moment, but one that I have been very stressed about throughout this journey. Of course, I am also eager to communicate on the bigger picture and beating this disease.

      We care about your feedback. Let us know how we can improve your CancerCompass experience.