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LanreotideNET's Recent CancerCompass Activity

  • LanreotideNET has replied to a post on the message board

    Hello Anoop, Perhaps you sent this message to me by mistake (I'm not Carrie).  However, I am grateful since you gave me the lead to  research about PDL-1. I found this great source of up to date info on NET treatment, including immunotherapy options and PDL-1 and other trials: https://ronnyallan.com/tag/immunotherapy/ I hope this is useful to you and other readers, all the best! Rick

    August 25, 2017 view post
    • LanreotideNET has replied to a post on the message board

      Hello.I have a poorly differentiated NET with no primary origin that was found and surgically removed from the small intestine 5 years ago. Since then, I've been on LANREOTIDE 120 MG every 4 weeks. I first had 29 rounds, then 10 months without it and lately I had 9 more rounds until my oncologist stopped it 6 months ago due to severe side effects.Are you still on Lanreotide or moved on to a different treatment? I w...

      June 30, 2017 view post
      • LanreotideNET has replied to a post on the message board

        Hello.I have a poorly differentiated NET with no primary origin that was found and surgically removed from the small intestine 5 years ago. Since then, I've been on chemo LANREOTIDE 120 MG every 4 weeks and surprisingly I've read almost all posts here but nobody mentions being on that same treatment.I first had 29 rounds, then 10 months without it and lately I had 9 more rounds until my oncologist stopped it 6 months...

        June 30, 2017 view post
        • LanreotideNET has created a new message board discussion

          Hello.I have a poorly differentiated NET with no primary origin that was found and surgically removed from the small intestine 5 years ago. Since then, I've been on chemo LANREOTIDE 120 MG every 4 weeks and surprisingly I've read almost all posts here but nobody mentions being on that same treatment.I first had 29 rounds, then 10 months without it and lately I had 9 more rounds until my oncologist stopped it 6 months...

          June 30, 2017 view discussion
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          About LanreotideNET

          Patient
          Other Cancer

          My type of cancer is a poorly differentiated Neuroendocrine Tumor in the small instestine.

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