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Lucy_A's Message Board Messages

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Linda, I am so sorry that I have just noticed your mail from March 2004 regarding Post Mastectomy Pain. And I am so sorry for your pain. I had my lumpectomies and mastectomy 3 years ago and I am sorry to tell you this but I still have the pain. At least 3-4 days a week I have pain under my arm pit and across my chest - burning and stabbing nerve pain.I have been told by MD that it will go away!! But when? And now no one will give me any pain meds. !!! I have been to a pain center and they want to try me on neurontin which is used for patients with other nerve pain conditions but I am afraid of the side effects.I am thinking of trying acupuncture next. There is very little out there about the syndrome. Good luck with your search for relief. Lucy New York
Pam, I so appreciate your frank response to my question. It is experiences such as yours which make me question the value of Tamoxifen. I am hearing more negative reports than otherwise. My very best thoughts for a brighter and more comfortable future. Lucy
I was diagnosed with cancer of the breast in May and after several lumpectomies had to have a mastectomy. I have now been informed that since my tumor is an estrogen dependent form I should go on Tamoxifen. I have heard so many horror stories about the drug from women who tried it for months that I am fearful about starting and I am wondering if anyone out there did NOT follow MD advice and did not take the drug and are doing OK. Any advice or experiences are welcomed. Thanks Lucy
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About Lucy_A

Patient
Breast Cancer

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