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Mack1994's Recent CancerCompass Activity

  • Mack1994 has replied to a post on the message board

    Hello Tootsie7, I was diagnosed in 1994 with oligodendroglioma grade 2, located in the right fronatal lobe, had total resection and was recurrence free for six years, recurrence was within the resection cavity of the prior surgery, had another resection and was put on temodar and was progression free for ten years, and then another recurrence and another resection, those three times the pathology came back that it w...

    February 11 at 6:55 PM view post
    • Mack1994 has replied to a post on the message board

      Hello Macpudd,I do not have GBM, I was diagnosed in 1994 with stage 2 oligodendroglioma. I have been on temodar which gave me ten years without recurrence, but I developed a problem with fatigue, however, I was able to continue working without performance issues, but quite often I would come home from work and have to sleep for about an hour before dinner. In December of 2016 I had recurrence of tumor growth, but thi...

      January 04 at 4:51 PM view post
      • Mack1994 has replied to a post on the message board

        Hello Lesliegbm, Sorry I did not reply sooner, had MRI on October 24th, all clear. I have been trying to keep myself busy, been attending the Live strong program at the YMCA, the program is designed for cancer patients specifically, I find it is therapeutic to be with other cancer patients who understand what were all going through. I started the program by going two evenings a week for 1 hour and fifteen minutes, ...

        November 16 at 4:02 PM view post
        • Mack1994 has replied to a post on the message board

          Hi Lesliegbm I like your self have become intolerant of both hot and cold weather. In the heat ,especially in the 90's, I become weak and light headed, like I'm going to pass out. In the cold, regardless ot how much I layer my clothing within minutes I start to shiver. My doc's have told me this is due to peripheral nerve damage from the chemo I was on, they also told me it could be permanent, but they think it w...

          September 27 at 6:50 PM view post
          • Mack1994 has replied to a post on the message board

            Hello Tubbytwo, I was a practicing Registered Nurse for 33 years, 20 of those years I was an IV nurse, I was and still am a Certified Registered Nurse Infusion Therapy as well as Board Certified- Vascular Access.  With any surgical procedure there will be development of scar tissue, I've seen your scenario dozens of times, I cared for a patient that had a port placed before he had a kidney transplant, he also h...

            July 26 at 4:33 PM view post
            • Mack1994 has replied to a post on the message board

              Hi Fran, definitly not the kind of news you want to hear. I was diagnosed with oligodendroglioma grade 2 in October 1994, it was located in the right frontal lobe, they did a complete resection and I was progression free for 6 years with just the surgery. In 2001 I had a seizure and MRI showed recurrence in the same area, I again had a total resection and was put on temodar 5day cycle for 12 months and was progress...

              June 18 at 6:39 PM view post
              • Mack1994 has replied to a post on the message board

                I empathize, I finished 6 cycles of PCV first week of June, subsequently I developed shingles, I had finshed my chemo so I can't answer as to continuing the temodar. I was admitted to the hospital and placed in isolation, as shingles is highly contagious, Iwas there for eight days and received acyclovir 800mg IV every 8 hours, could not be released from hospital as I had to receive at a minimum of at least seven day...

                June 17 at 7:12 PM view post
                • Mack1994 has created a new message board discussion

                  Just finished 6 cycles of PCV FOR ANAPLASTIC OLIGODENDROGLIOMA, Iam weak, tired and deconditioned.  Any and all info to detox and gain strength would be appreciated. What have you done, what will you do?

                  May 28 at 8:53 PM view discussion
                  • Mack1994 has replied to a post on the message board

                    I and my wife, like you, were completly overwhelmed when I was first diagnosed, our first son was 10mos old and my wife was pregnant with our second son.They are young men now and I beleive so it will be for you and your husband. I was employed as a Registered Nurse, working in a major medical center I had access to research and data, what I was doing was not only educating myself, but also looking for hope, much of...

                    May 27 at 8:37 PM view post
                    • Mack1994 has replied to a post on the message board

                      Hello bizzerbee, I was diagnosed in 1994 with oligodenroglioma grade two, I've undergone three resections since, the most recent in February of 2017. After my first resection I was progression free until 2002, had another resection(total) and was prescribed temodar, cycled five days every twenty-two days for 12 cycles, my neuro-oncologist recommeded I fore go radiation treatment as I wanted to continue working, at t...

                      May 27 at 3:32 PM view post
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                      About Mack1994

                      Nurse
                      Brain Cancer
                      Conventional Treatments

                      DIAGNOSED WITH OLIGODENDROGLIOMA IN 1994 AT AGE 39 AM NOW 62 YEARS OLD, DO NOT GET HUNG UP ON STATISTICS, LONG TERM SURVIAVL IS POSSIBLE SO DON'T ALLOW YOURSELF TO DEVELOP OTHER HEALTH PROBLEMS THAT WILL KILL YOU.
                      Retired RN father of two sons and married 33years. enjoy RIDING MY MOTORCYCLE AND CARPENTRY WORK. life is good despite the challenge of living with cancer.

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