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Mack1994's Recent CancerCompass Activity

  • Mack1994 has replied to a post on the message board

    Hello Cervivor, chemo brain is very real, and it is well documented in the medical literature.  I finished radiation and 6 rounds of PCV chemo the end of May 2018, I finally feel like the fog is lifting, not completly but much better than just a couple of months ago, I have my interest in reading back and can actually recall what I've read. I saw a neuro-psychologist back in February, I passed the testing thou...

    May 01 at 7:58 PM view post
    • Mack1994 has replied to a post on the message board

      Hello elisa60, I'm a brain cancer survivor, however, I was a certified Registered Nurse in Infusion Therapy and also Board Certified in Vascular Access. A porta-cath is the way to go as many chemotherapeutics can only be administered thru a centrally located catheter, the catheter does not actually enter the heart but dwells in the Superior Vena Cava at the cavo-atrial junction. The superior vena cava is the end poi...

      April 16 at 7:27 PM view post
      • Mack1994 has replied to a post on the message board

        Is this feeling normal or is it just me? It is not just you, what you are experiencing is very real, and cannot be understood by others who have not experieced the struggle that cancer is. I am not female and I cannot know or understand what it is like to have breasts removed, and the resulting body image disturbance. I have been dealing with brain cancer since 1994, I've had four brain surgeries for tumor resectio...

        April 12 at 4:25 PM view post
        • Mack1994 has replied to a post on the message board

          Hello nyc212, Sorry about your husbands incidental finding,however oligodendroglioma is treatable over the long term, I was diagnosed in 1994, after having a seizure, it was located in the right frontal lobe, on the very tip of the lobe, I had a total resection and was recurrence free for six years, then in 2002 I had another seizure in December of that year, with another total resection and was put on Temodar on, f...

          February 26 at 6:57 PM view post
          • Mack1994 has replied to a post on the message board

            Hello Tootsie7, I was diagnosed in 1994 with oligodendroglioma grade 2, located in the right fronatal lobe, had total resection and was recurrence free for six years, recurrence was within the resection cavity of the prior surgery, had another resection and was put on temodar and was progression free for ten years, and then another recurrence and another resection, those three times the pathology came back that it w...

            February 11 at 6:55 PM view post
            • Mack1994 has replied to a post on the message board

              Hello Macpudd,I do not have GBM, I was diagnosed in 1994 with stage 2 oligodendroglioma. I have been on temodar which gave me ten years without recurrence, but I developed a problem with fatigue, however, I was able to continue working without performance issues, but quite often I would come home from work and have to sleep for about an hour before dinner. In December of 2016 I had recurrence of tumor growth, but thi...

              January 04 at 4:51 PM view post
              • Mack1994 has replied to a post on the message board

                Hello Lesliegbm, Sorry I did not reply sooner, had MRI on October 24th, all clear. I have been trying to keep myself busy, been attending the Live strong program at the YMCA, the program is designed for cancer patients specifically, I find it is therapeutic to be with other cancer patients who understand what were all going through. I started the program by going two evenings a week for 1 hour and fifteen minutes, ...

                November 16 at 4:02 PM view post
                • Mack1994 has replied to a post on the message board

                  Hi Lesliegbm I like your self have become intolerant of both hot and cold weather. In the heat ,especially in the 90's, I become weak and light headed, like I'm going to pass out. In the cold, regardless ot how much I layer my clothing within minutes I start to shiver. My doc's have told me this is due to peripheral nerve damage from the chemo I was on, they also told me it could be permanent, but they think it w...

                  September 27 at 6:50 PM view post
                  • Mack1994 has replied to a post on the message board

                    Hello Tubbytwo, I was a practicing Registered Nurse for 33 years, 20 of those years I was an IV nurse, I was and still am a Certified Registered Nurse Infusion Therapy as well as Board Certified- Vascular Access.  With any surgical procedure there will be development of scar tissue, I've seen your scenario dozens of times, I cared for a patient that had a port placed before he had a kidney transplant, he also h...

                    July 26, 2018 view post
                    • Mack1994 has replied to a post on the message board

                      Hi Fran, definitly not the kind of news you want to hear. I was diagnosed with oligodendroglioma grade 2 in October 1994, it was located in the right frontal lobe, they did a complete resection and I was progression free for 6 years with just the surgery. In 2001 I had a seizure and MRI showed recurrence in the same area, I again had a total resection and was put on temodar 5day cycle for 12 months and was progress...

                      June 18, 2018 view post
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                      About Mack1994

                      Nurse
                      Brain Cancer
                      Conventional Treatments

                      DIAGNOSED WITH OLIGODENDROGLIOMA IN 1994 AT AGE 39 AM NOW 62 YEARS OLD, DO NOT GET HUNG UP ON STATISTICS, LONG TERM SURVIAVL IS POSSIBLE SO DON'T ALLOW YOURSELF TO DEVELOP OTHER HEALTH PROBLEMS THAT WILL KILL YOU.
                      Retired RN father of two sons and married 33years. enjoy RIDING MY MOTORCYCLE AND CARPENTRY WORK. life is good despite the challenge of living with cancer.

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