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Madeline_Ruth's Recent CancerCompass Activity

  • Madeline_Ruth has replied to a post on the message board

    I'm not so sure that GBM is rare with Lynch. I just think it is not checked. My mother was diagnosed with a Grade IV GBM in 2005. Because of the location of the tumor, she was not a candidate for clinical trials, so she followed an 80% resection, with radiation and Temodar. After 7 months, the tumor was growing in the tumor bed again, exponentially, in spite of Temodar. She decided to stop the Temodar, and was given ...

    December 31, 2017 view post
    • Madeline_Ruth has replied to a post on the message board

      I think it would be good for you to talk to your physician about this, and inquire about group support as well. It would help you to be taking an antidepressent to help deal with the emotions and sadness of your own life changes. Since you are healthy, it would help you to have lunch with friends, or a sibling, on a regular basis, find a place to go walk with a friend or workout/exercise, go to church, and just get o...

      December 31, 2017 view post
      • Madeline_Ruth has replied to a post on the message board

        Check out what is happening at Duke:  https://www.dukehealth.org/treatments/cancer/brain-tumor Amazing! I wish this had been an option when my mother was diagnosed.

        December 31, 2017 view post
        • Madeline_Ruth has replied to a post on the message board

          It seems to me that he is doing more than most patients can even hope to do with a GBM. Actually, I am amazed and in much admiration that he is still able to do so much after one year of living with a brain tumor. It sounds like he is doing what he wants to do and what he can do, and that he knows his limits. I would certainly not push him to do more. This may not be the time in his life that he feels he can "give ba...

          December 31, 2017 view post
          • Madeline_Ruth has replied to a post on the message board

            Where was your tumor located? Most likely, this has everything to do with your long term survival, which is wonderful. Any survival of a glioma this long, is mostly believed that the tumor was graded incorrectly in the first place, but also, the location could be the key to your good health. Interested to know...all the best.

            December 31, 2017 view post
            • Madeline_Ruth has replied to a post on the message board

              Hi, Kirsty,  I'm so sorry that your son has this diagnosis. Necrosis is cell death. When the tumor shoes "necrosis" inside of the tumor, this is typically from what is known as programmed cell death in the glioblastoma. The tumor grows at such an exponential rate that the cells multiply quickly then die. When necrosis is seen inside of the tumor, it is typically staged at grade IV, because the tumor is multiply...

              December 31, 2017 view post
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              About Madeline_Ruth

              Brain Cancer

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