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MargaretFT's Recent CancerCompass Activity

  • MargaretFT has replied to a post on the message board

    I have/had stage3a NSCLC which was first diagnosed in 2018. After surgery it returned and I started on Tarceva 150mgs. in April 2009. Within 3 months my oncologist dropped the dose to 100 mgs. after a CT scan showed I was cancer-free. After a year the dose was reduced to 75mgs., a year later to 50mgs. It has now been 5 years, I take 50 mgs. Tarceva early each morning, have 6-monthly blood checks and an annual CT scan...

    June 28, 2016 view post
    • MargaretFT has replied to a post on the message board

      If one is sensitive to Tarceva, 50 mgs can be enough. I have been on Tarceva for 5 1/2 years, 3 1/2 of them on 50 mgs - my oncologist is happy with that as it is a high enough dose to be effective and low enough to keep the side effects at a minimum. I now have 6-monthly blood tests and an annual CT scan. I'm allergic to Imodium so take a low dose of steroids for the diarrhea, and c...

      November 22, 2014 view post
      • MargaretFT has replied to a post on the message board

        Hi,   Hi Jackie and other Fellow Tarceva-takers,   As always I have learned a lot from this conversation even though I have been on Tarceva (my daily dosage is down to 50mgs/day and still keeping the cancer at bay) for over 4 years. I still have diarrhea and am on intestinal steroids (Budesonide) to combat it, as I also had microscopic colitis. However I will now ask my doctor that I ...

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        • MargaretFT has replied to a post on the message board

          The antibiotic I use for pimples is Zindaclin 1% gel. Hope it works as well for you too. Margaret

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          • MargaretFT has replied to a post on the message board

            Hi Ernie,   I was nsclc3a at diagnosis 5 years ago, but have had surgery and a recurrence, but nothing now on scan. I don't know anything about Afatinib but it is from the same family of treatments as Tarceva (erlotinib) - witness the 'ib' endings. I ignore stories of resistance developing and live my life as if I will go on forever, while doing everything the oncologist tells me to do. I do hope you...

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            • MargaretFT has replied to a post on the message board

              There are lots of reports here from Tarceva-users, including several by me. It'll be 4 years for me come April, at least 3 of them which I would not have had without Tarceva so I am very grateful for it. Of course I have side-effects (occasional pimples, once inside my mouth and down my throat which I treated by stopping the Tarceva for a few days while it healed; diarrhea frequently, tiredness) but worth it. In Janu...

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              • MargaretFT has replied to a post on the message board

                I am a 4-year NSCLC survivor and 70-year-old female also living in the UK. I've been on Tarceva (the 'sister' pill to Iressa) for 3 years and although I get the occasional side-effect, the oncologist has reduced the dose so I take the maximum dose I can tolerate with the minimum side-effects. I cannot encourage you enough to continue being positive and optimistic, living your life and making the most of each mom...

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                • MargaretFT has replied to a post on the message board

                  Diana, I hope that you doubled your dose at the recommendation of your doctor. This is strong stuff and I wouldn't suggest you change it without a doctor knowing you are doing it. God bless you too Diana. I hope you find the strength to stop smoking from now on.

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                  • MargaretFT has replied to a post on the message board

                    From my perspective as someone who is on Tarceva, what I would like from my carer is encouragement to keep taking the medication and suggestions for symptomatic relief of any side effects. Many have mentioned Clindomycin cream for acne/pimples (from the doctor) which I found was great too, Lomotil or Pepto-bismol or something else to control any diarrhea. The most important thing for me is to continue taking the Tarc...

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                    • MargaretFT has replied to a post on the message board

                      My oncologist lowered my daily Tarceva dosage from 150 mgs to 50 mgs very slowly. I went from 150 to 100 after 3 months and an all-clear scan. A year later, a clear PET scan (I mean no sign of cancer cells) so dose dropped down to 75 mgs.. Same again last April and I continue fine on 50 mgs. I'll have another scan in April and if it still clear I don't what will happen - we'll see. If the dose drops too low and cance...

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                      About MargaretFT

                      Survivor
                      Lung Cancer - Adenocarcinoma, Lung Cancer - Non-Small Cell
                      Alternative Treatments, Cancer Treatments, Clinical Trials and Research

                      I was diagnosed with lung adenocarcinoma (Stage 3A) in May '08, which was followed by surgery and 4 cycles of chemotherapy. It recurred in March '09 but has completely disappeared thanks to Tarceva, which I have been taking for 16 months. I am now on 75 mgs. daily, and would be interested in being in touch with other non-smokers with lung cancer successfully responding to Tarceva (erlotinib).

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