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Maudsie's Recent CancerCompass Activity

  • Maudsie has replied to a post on the message board

    Cindy makes good points and reminds me: I also had a pretty exact routine when I took my xeloda, ate carefully, and kept daily notes.  It really helped when I wanted to recall information to report to the oncologist...and it also gave me a sense of control somehow.  This control thing, taking notes, doing research, paying attention to detail...I guess it was purely psychological...but it helped.  :)

    March 11, 2017 view post
    • Maudsie has replied to a post on the message board

      Hi -- not sure if you were directing that question to me.  Probably not.  But since I ha the exact same diagnosis, surgery, and similar follow-up, I will tell you how Xeloda was for me.  And, actually, it's not too bad.  I had it first, before my course of gemitabine. I had Xeloda along side radiation, and I really couldn't tell much change.  For several weeks.  Toward the end, the last ...

      March 11, 2017 view post
      • Maudsie has replied to a post on the message board

        excellent summary.  thanks, Cindy!

        February 10, 2017 view post
        • Maudsie has replied to a post on the message board

          Hi Lora, so sorry about your mom.  It does sound almost exactly like my story, both the cancer stage and cancer treatment.  (I am assuming the "finger-size" liver portion did show direct invasion from the GB, but that the margins were clear and negative, yes?)  Yes I had CT scans before we started treatment, a few times in the middle, and then a few times when we were all done, very spread apart, just ...

          February 10, 2017 view post
          • Maudsie has replied to a post on the message board

            Hi Carol --  Well, one thing that is often happens, as it did in my case, is that some of us had GB surgery for gallstones or related problems.....THEN found out there was cancer there....THEN had a larger more extensive surgery to both stage the cancer and hopfully remove what was able to be found locally.  In my case, the cancer invaded the portion of liver that was next to the gb...and that was it. &nbs...

            January 16, 2016 view post
            • Maudsie has replied to a post on the message board

              Hi Carol -- just to clarify -- I'm not the lady in India with the mother, I'm just someone who responded to her.  I had Stage II -- which was operable.      I am so sorry to hear about your GB cancer,  are you going to MD Anderson in Houston?    A great place! Best of luck to you -- Maudsie

              January 14, 2016 view post
              • Maudsie has replied to a post on the message board

                Keep in touch, let me know how everything goes.

                September 14, 2015 view post
                • Maudsie has replied to a post on the message board

                  I too was diagnosed after laproscopic gall badder removal for gallstones.  I then had the larger surgery, where the surgeons found the cancer had invaded the liver in the area that had been touching the gall bladder.  They removed that slice of liver....which removed the cancer.  Also the removal of lymph was done to see if there was any spread that way (there wasn't).  I am just saying that the o...

                  September 13, 2015 view post
                  • Maudsie has replied to a post on the message board

                    I just want to say again: the single most important thing is surgery.  The chemo is an extra step AFTER that.    So unless there is an immediate problem or reason why not, the surgery should be scheduled as soon as possible. good luck!

                    September 13, 2015 view post
                    • Maudsie has replied to a post on the message board

                      I am your mother's age now, 68, I was 61 when I had the cancer. If your mother is in otherwise good health, she should do pretty well.  Of course, everyone is different.  You know your mother best, but in general I think this is information that you should not withhold.  I am assuming surgery will be scheduled very soon (or it should be) and she will certainly have to know what is going on.  The s...

                      September 11, 2015 view post
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                      About Maudsie

                      Patient
                      Gallbladder Cancer

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