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Mish86's Message Board Messages

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Pre op X-ray was done today and looks clean thank goodness. Am I not writting in the right place? I didn’t expect no replies :( I am also on the hunt for any good recipes for someone with a partial glossectomy if anyone has any? Going to try my best to keep her eating.
Hey everyone! Never thought I would be here......this is always something terrible you hear about happening to OTHER families. I admit I’m still in shock.....my mom is a super healthy 58yr old who doesn’t smoke, drink heavily, is fit, and has been married to my dad for over 30yrs. She is the absolute rock of our family of five....she gives so much and is always the one taking care of all of us. She is honestly the best person I know and my best friend in many ways. She’s had issues with frequent canker sores for years but this month had one on her lateral tongue that didn’t go away and felt more like a “lump”. She went to the derm she usually sees for her canker sores who made some awkward comment about it “almost looking like a cancer” gave her an antibiotic cream and told her to come back in two weeks if it didn’t improve. Luckily my mom was proactive and didn’t like the “cancer like” comment and pursued an assessment with a general ENT doc she works with that same week (she works at a medical clinic). He did a punch biopsy and here we are now.....squamous cell carcinoma - poorly differentiated to boot. I am a cardiac nurse myself so I understand a bit of the medical side of things to a point, but really and truly don’t know a lot about head and neck cancers. They’ve since done a CT that didn’t get the best image because I guess some old fillings she has caused streaking artifact....but it APPEARS to NOT no lymph nodes are enlarged. Not staged or anything yet. I’d really like her to push for an MRI, what do you guys think? She saw the specialist the following week and so far the plan is just for surgery. Removing part of the tongue and electively the lymph nodes on that side to be tested and such though they looked okay on the (crappy) CT. Surgery is scheduled for April 10th.....is that a reasonable time frame to wait on this do you guys think? We are in Canada so sometimes heathcare can be pretty slow....but free thank god. I’m just a ball if stresss every day that shit stays in her body is a day too long for me. I want surgery yesterday, ya know lol? Reading ppls stories and wanting my mom to have the best chances at a cure....do you think she also should consider pushing for a bit of radiation or chemo? I know it sounds horrific but if it means better chances she could be cured for good.....ugh I don’t know. It’s her decision ultimately, we just need and want her around and well for a long long time. No mention of a graft or feeding tube yet, is that always a given? Sorry for all the questions guys : ( Too add to matters, I am expecting my first baby in May....she was originally planning to come stay with me for a week or two then to help me out before all this happened...but now with surgery booked for April 10th....I will most likely need to be the one helping her.....and i don’t want her to feel bad about that at all. I would love some advice on how to best help support her mentally and emotionally and to also help with her physical recovery. (Foods? Home remedies? Etc) So far I’ve just talking with her, trying to focus on the positives (no lymph node enlargement, etc) and sometimes trying to distract her mind from things with humour etc. Trying to keep my personal distress with the situation to myself. Kind of at a loss as to how to be better or what I can say. What has been helpful for you guys who have been in her shoes? Thank you and god bless you all.
Hey everyone! Never thought I would be here......this is always something terrible you hear about happening to OTHER families. I admit I’m still in shock.....my mom is a super healthy 58yr old who doesn’t smoke, drink heavily, is fit, and has been married to my dad for over 30yrs. She is the absolute rock of our family of five....she gives so much and is always the one taking care of all of us. She is honestly the best person I know and my best friend in many ways. She’s had issues with frequent canker sores for years but this month had one on her lateral tongue that didn’t go away and felt more like a “lump”. She went to the derm she usually sees for her canker sores who made some awkward comment about it “almost looking like a cancer” gave her an antibiotic cream and told her to come back in two weeks if it didn’t improve. Luckily my mom was proactive and didn’t like the “cancer like” comment and pursued an assessment with a general ENT doc she works with that same week (she works at a medical clinic). He did a punch biopsy and here we are now.....squamous cell carcinoma - poorly differentiated to boot. I am a cardiac nurse myself so I understand a bit of the medical side of things to a point, but really and truly don’t know a lot about head and neck cancers. They’ve since done a CT that didn’t get the best image because I guess some old fillings she has caused streaking artifact....but it APPEARS to NOT be in the base of her tongue and no lymph nodes are enlarged. Not staged or anything yet. I’d really like her to push for an MRI, what do you guys think? She saw the specialist the following week and so far the plan is just for surgery. Removing part of the tongue and electively the lymph nodes on that side to be tested and such though they looked okay on the (crappy) CT. Surgery is scheduled for April 10th.....is that a reasonable time frame to wait on this do you guys think? We are in Canada so sometimes heathcare can be pretty slow....but free thank god. I’m just a ball if stresss every day that shit stays in her body is a day too long for me. I want surgery yesterday, ya know lol? Reading ppls stories and wanting my mom to have the best chances at a cure....do you think she also should consider pushing for a bit of radiation or chemo? I know it sounds horrific but if it means better chances she could be cured for good.....ugh I don’t know. It’s her decision ultimately, we just need and want her around and well for a long long time. No mention of a graft or feeding tube yet, is that always a given? Sorry for all the questions guys : ( Too add to matters, I am expecting my first baby in May....she was originally planning to come stay with me for a week or two then to help me out before all this happened...but now with surgery booked for April 10th....I will most likely need to be the one helping her.....and i don’t want her to feel bad about that at all. I would love some advice on how to best help support her mentally and emotionally and to also help with her physical recovery. (Foods? Home remedies? Etc) So far I’ve just talking with her, trying to focus on the positives (no lymph node enlargement, etc) and sometimes trying to distract her mind from things with humour etc. Trying to keep my personal distress with the situation to myself. Kind of at a loss as to how to be better or what I can say. What has been helpful for you guys who have been in her shoes? Thank you and god bless you all.
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About Mish86

Caregiver, Nurse
Head and Neck Cancer, Oral Cancer, Squamous Cell Carcinoma, Tongue Cancer

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